Nerve pain

[Luke1993]

Hello I am making a post for my finance she has been going through for over a year and still not any further forward while going through nhs.

Nerve pain / neurological pain…. What actually works? Awaiting neurologist appointment at the beginning of March but have a ct scan on my head next week to see if there are any abnormalities. All my bloods say I’m fine but it’s not just nerve pain. It’s pain in my hands and feet including the pads of my feet and agony in my tendons.

Im trying to be positive but the pain is bad, the confusion is insane can’t put sentences together or communicate properly. And some of the symptoms I’m experiencing are really strange to say the least….

I just started gabapentin but only on 400mg per day they upped that from 300mg per day so waiting to get another increase

I’m looking for the best different holistic recommendations, but really any recommendations I can speak to my doctors about….if anyone has any, even one, it would make such a difference

[PainConcernProjects Partner Community Champion Pain Concern]

Hi,

Thank you for sharing your pain experiences.

You are very welcome to attend one of your pain education sessions. This is delivered by people with lived experience of pain and aims to provide a better understanding of pain to help you manage your condition more effectively in the long term. More information, including booking, can be found here: painconcern.org.uk/pain-edu...

You may also like to look at our neuropathic pain leaflet painconcern.org.uk/product/...

We also have a navigator tool that aims to help discussion between patients and health care professionals. Further information is here: painconcern.org.uk/the-navi...

I hope that information is helpful, and that you are able to manage your pain more easily soon. I know from experience that it can be a difficult journey when trying to find out the cause of pain and also to manage it. It is great that you are reaching out for support and open to holistic approaches too.

-Pain Concern Admin

[Dino12345]

I suffer really badly all over nerve pain now. Started after chemotherapy. That left me almost unable to use my hands and feet. Some days I want to take a garden spade and take off the top of my foot it's that bad.I have been on pregabapenten and amertrilyne. Excuse the spelling.

I also take PPIs for gastritis and ulcers.

I've recently been doing a lot of research of my own as my GP just told me to get over it. As chemotherapy damage is for life!!

Thankfully a new GP at the practice really listened to me when I was once again in agony and she did loads of blood testvand it turned out I have lots going one but at my request she did a B12 and connected bloods to discover my B12 was low. She agreed to put me on the B12 loading dose of an injection every other day for two weeks. After a week I could see better and was struggling less and less for words and my memory has improved. I've a long way to go but I'm getting there. I will now get them 12 weekly for a year and review.

Honestly if your GP will do it it's really worth pushing for them to test for low B12.

But make sure your not supplementing for at least a month first. If they won't test look into B12 deficiency and it's symptoms. You never know.

So many drugs stop your body from being able to absorb it.

Good luck, nerve damage sucks

[Defenders]

Hi Luke, I’m sorry to hear about your fiancé’s nerve pain. I ask all people on here with similar symptoms to mine, have you been prescribed a Fluoroquinolone antibiotic sometime prior to the nerve pain starting? These include Ciprofloxacin, Levofloxacin, Moxifloxacin etc? If so, this can be the culprit! Message again if your answer is in the affirmative.

[Konagirl60]

Natural items that may help with pain and spasms are turmeric pills/tincture, passionflower tablets ( great for anxiousness, stress, pain and sleep ), magnesium bisglycinate and CBD/THC gummies.

[Bambs]

Hi I've had nerve pain for 8 years, I know what your going through. Ask your doctor for morphine it really helps

[Meb60]

I have been on gabapentin for years. I take mine for small fiber neuropathy. I have everyone of the symptoms. My back is the worst. I take the max 4200 mg a day. I have bad days and not so bad days. I also take amitriptyline 30 mg. Good luck to you.