Too busy dealing with my pain to explain my pain AGAIN

[Winniepooh1976]

Hi all so I am awake pains bad but house quiet which is novel as usually noisy. Sat thinking about referral to pain clinic to explain again the history of the last ten years. I have extensive scar tissue fusion after three major abdominal surgeries. The last surgery cut away some of the scar fusion but it creates more. On the plus it means I came of morphine although with intensity of my recent fl

[Winniepooh1976]

Sorry clicked wrong button 😌 flares up means I could do qwith going back to pain clinic. I am unable to plan !my days as like most people I cannot predict pain levels. Just the thought of going back trying to make it weekly, so I can see the pharmacist. Anyone else having breakthrough pain and running out of confidence ever getting better days? Can I see a pain Dr without having to do the weekly group breathing relaxing learning about types of pain? I am over ten years into this journey just sort my meds out and control my pain levels!!! Rant over just really fed up of crappy pain meds that do notbwoerk anymore.

😓😫😓

[EvilAunt in reply to Winniepooh1976]

Amen WinniePooh! 18 years of intolerable, both pain and the mandatory dance and juggle 😤

[Winniepooh1976 in reply to EvilAunt]

Bless you it does feel like a dance doesn't it ? So tired of it how to motivate when it hurts just breathing? Also lack of sleep is an issue as amitripyline make me feel hung over. I look at before my pain when I could do this things. The wasted time I live in pain the dead zone. Hopefully !y flare up will pass x

[BadHare]

Can you write your history down, & print it to show whoever you see at the pain management clinic? You'll be able to add notes should there be further appointments, & it's a way to organise everything you need to explain in case you're nervous on the day.

I also write notes on my phone & send myself texts with reminders.

[Winniepooh1976 in reply to BadHare]

Thank you foer your reply I will write it down of is the process and time to go that's difficult for me. Having bad flare up at the min I am usually not this defeated. I think of the days before my pain how I took my good health for a given. I just want somewhere to go to a break from the constant Pain. I am tired really flipping shattered😔

[Claire89J]

I found pain management programme really helpful. It explains the pain processes and how many things influence and effects our level of pain and that meds are not the only answer, there is a lot more we can do.

I hope you do go and give it another chance and find it helpful.

[Winniepooh1976]

Thank you for replying to me I will go back last time I learnt how to use a tens. I have to do something soon to get my good days back. Awake again pain bad decision made. I will ring Dr for referral back or can i just ring myself??

[EvilAunt]

Has anything changed?

[Winniepooh1976 in reply to EvilAunt]

Hi nope nothing meds wise but got a new tens machine and a kitten to keep me company when I am bedridden.

How are you? This freezing weather a bit crap eh?x

[EvilAunt]

Indeed it is. We have a cat too. She's a good comfort, when she chooses. Sorry you're still feeling bad. Insert a sigh of frustration for all of us. Maybe a Christmas miracle? 😹