Hi there i used to suffer from CRPS, now i live with CRPS. My condition used to define my life, i was a sufferer . I decided having tried everything that i would change my whole outlook on life. I made massive changes i had to, nothing previously had helped, from treatments to meds i tried them all , without any major long term relief. I decided to work on what i could do , rather than looking for what others could maybe do. I stopped looking for the miracle cure and tried to figure out how i could improve my life. I started to believe that instead of being controlled by CRPS that i would control my condition. I started by figuring out if i could control the things making my condition worse. Commonly known as triggers. I found the main ones being stress, fatigue ( no sleep) other peoples perceptions, depression etc. I then decided to try and tackle these 1 by one.
Heres my results. Before i undertook this i would have 3 or 4 flair ups a month lasting 4 days to 2 weeks. Total bed ridden unbelievable pain imobility etc . In the last 4 years no more that 10 fllair ups lasting more than 2 days. Im not cured its incurable but im massivley better. I am more active , sleep better , cope better etc
And best of all i went from 100mg mst plus liquid morphine and 1200mg of gabapentine plus other drugs which i took for around 7 or 8 yrs to nothing at all.
Yes i now take nothing. It was alot of hard work but i feel so much better. Do i still have pain of course. But i dont let it take over and managing my life means i now have understanding what is causing my pain and how it all begins. So i work on these things . It was so difficult but nothing new is easy to learn . I now tutor groups in chronic pain management which helps massively and seeing people improve is such a buzz . Im not saying every technique helps everyone one but if one thing helps then its great. Ive heard alot of people say mumbo jumbo but stay the full course and take away things that have helped.
I think for me i am very driven and when i do something i throw the kitchen sink at it.
Im very regimental and this probably helped me.
I hope to improve the life of many as i know first hand the struggles.
But change can only happen with lots of effort and determination not to be beaten.