I was diagnosed with AS 12 years ago but I think I had it for many years before this. I am currently on CoCodamol and Dicloflenac.
It used to come in "flares" with lapses in between but now I have "flares" with less pain in between and it seems to have spread to my upper spine ribs as it is now painful esp when breathing heavily etc. As for coughing or sneezing, absolute agony.
But strangely it is not the pain that I find so hard it is the fatigue, I find it difficult to get through a day without falling asleep with exhaustion. I teach and to do my job properly I have to work into the night but just cannot stay awake in the evenings. Monday evening is usually OK but as the week goes on it gets impossible. Weekends I spend recovering.
My Dr had me tested for sleep Apnoe and I came back negative but the monitor I wore showed that I was asleep for 16 of the 17 hours being monitored, I was still asleep when the monitor turned off and slept for a few more hours. I was asleep again 4 hours after waking.
I have asked for a Rheumy appointment but the NHS are so slow and then they cancelled.
Although my school know of my problems they have not come up with any Reasonable Adjustments despite asking for help.
I have CoCodamol and Dicloflenac for pain but taking those when teaching is not a good idea as I am not sure I am in complete control when on them, besides they just send me straight to sleep.
My social life is non existent, my house is a tip and my school wants to get rid of me, all because I just have no energy and find it difficult to move as well as I could.
I am at my wits end.