Im 16 and have been in hospital for the majority of 3 years, one of the conditions I have is called Elhas Danlos syndrome (type 3/JHS type), my consultant wants to do an intense rehab program for 3 weeks (I disagree). He wants me to do full time at school, do intense physical therapy and get the nurces not to use an hoist but to drag me into the wheelchair. I'm currently in hospital for abdominal pain, sickness, weigh loss and dizziness. If I did this rehab program I would loose weight (im currently 39kg and should be 63 an the very minimum), I'd be getting sick in the hospital school all the time, could faint because of the dizziness and be crying in pain! I going to Great Ormand Street hospital in London under rhumertoligy because the Gastroenterology dept is full, I'd do the rehab program with rhumertoligy at Great Ormand Street hospital and also see Gastro. Yes, I don't want to be in pain but also don't want to get sick all the time. This Rehab program could make all my Gastro symptoms worse but no one see's that, iv told my consultant I'll do the rehab program after I stop getting sick but he won't listen to me! School would also be to much Cox I haven't done a full day at school for 3 years! How do I persuade my consultant and my parents to not go ahead with this rehab program❔❓❔❓❔❓
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