CRPS- Feet and toes.

[Bunce]

What do people find helpful for CRPS in both legs? At the moment my toes turn red and feel like they are on fire? Any medication that help? Or nerve blocks, patches?

[evony123]

are you on beta blockers perchance? my heart onna left side doesnt work so they put me on them along with asprin and hb meds. made my feet purple, i had to go off them or i was gonna lose both limbs. hope alls well with you, jim

[Barnclown]

My version of CRPS in my feet runs alongside simultaneous erythromelalgia (aka EM, the burning condition) + raynauds (RP). It's taken me several years of these horrible symptoms to learn lifestyle management techniques...which have helped make these awful conditions somewhat more tolerable. My symptoms are 24/7. About the same time I was figuring out how to cope with all that, I was being diagnosed with systemic lupus (was in my late 50s...it turned out I'd been diagnosed with lupus as an infant & teen, but that diagnosis had gotten lost when I moved to the UK @21). My impression is that my oral systemic prescription lupus meds do also slightly reduce some of the daily cycle of erythromelalgia burning/fiery redness.

Whether you actually have erythromelalgia running alongside your CRPS or not, tips for managing EM fiery burning are probably still going to be useful to you (some Drs think EM is what causes the fiery symptoms in CRPS). I got most of my best lifestyle Ms age ENT & meds tips for managing the fiery burning cycle from:

erythromelalgia.org

There is also a v helpful Facebook page:

facebook.com/erythromelalgia

Wishing you all the v best with this