Has anyone seen my post?maybe did this all wrong?defo think i have.anyway hope someone can help?see other posts

[lewis08]

Help..lol

[earthwitch]

hi, you did it right. tell us a bit more about yourself.

[lewis08 in reply to earthwitch]

Hi there,just seen response,thought no one did?in hell,have neuropathic pain and docs gave me gabapentin,hell stuff not coping at all,side affects bad,on other stuff now,thats just as bad,what's up with you then?thanks for response

[burto1]

Hi, yes I can see your post. Sorry you in so much pain. Know where you coming from. I've got arthritis in most of my joints, had one knee which is still giving me grief. Got to have one on my other knee, which I'm dreading, with how my other one is.

[lewis08 in reply to burto1]

Hi thanks,i know now people can see my posts,sorry about your pain,cant get any help with my prob really,maybe sometime soon i hope?!

[burto1]

I hope so too, I'm lucky where I have a good doctor, who does his best to help me. I have a hospital appointment Thursday so will know if they doing another knee replacement. Take care.

[lewis08 in reply to burto1]

You too,good luck for thursdsy.

[Reykua]

Hi Lewis08,

Have you tried combining it with other pain meds?

I use a cocktail of pain meds to get me through. I combine Tramadol with codeine, paracetamol and amitryptiline at night. I'm not supposed to take ibuprofen but when it get's really bad, I do.

Do what works for you - discuss with your GP and let him know what you're experiencing and experiment in partnership with him using different combinations to see what works as no two people are the same.

It may be something as simple as increasing your Gabapentin and combining it with paracetamol,

Wishing you relief and success in your pain management.

[lewis08 in reply to Reykua]

Hi,thanks for replying,i just want off the pregablin that doc started me on three days ago,was tapering on gabapentin,these drugs are certainly not for me,i am having the worst side affects ever,would not want anyone to be feeling the way i do,i am not coping and docs are useless,no point in telling lies,i had never taken anything stronger than co-codamol before because they just were not for me,in agony,if i could get rid of hell side effects/withdrawel i would put up with pain which is immense,rather have my life back than feel like i have nothing to live for,very depressed as you can see from message,been googling to get info

[Reykua in reply to lewis08]

Hi Lewis08,

Felt just like you six months ago but decided to keep experimenting with different meds as I was on the verge of ending it all but looked at my daughter and thought twice.

Please, please don't give up. I found amytriptiline so much better - or should I say that I had much fewer side effects with that than the other two we've both tried and I've now been moved on to Duloxetine.

I still take amytriptiline at night to help me sleep as the duloxetine on it's own doesn't help me at night. When it's really bad, I take both and Tramadol as well!!!

Co-codamol is a really good painkiller and very easily tolerated by most people. May I suggest you combine it with Ibuprofen and perhaps some Tramadol and see how you go. Whatever you do, don't give up on yourself until you've given it a real good go.

Try your first combination during the day - preferably, with other's around - in case you have a reaction to it and let me know how you go.

Waiting to hear back from you and wishing you a lot less pain.

[lewis08 in reply to Reykua]

Thank you,ive other health issues so the pain relief you mentioned is not for me,looked at my two small grandson's and know they would miss me as ive been thinking of putting myself out of this misery too,struggled for 8 months,just cant do it,cant even see if anyone has same hideous side affects as me?thank you for taking time to respond,have docs tomorrow and a huge list of what i'm going through right now,i will make them listen (have done but they just fob me off)will let you know what happens..once again thank you.hope your pain is at a level you can cope with?take care.

[louiseamos in reply to lewis08]

Hey lewis08. Shake that thought off please...I feel that way regularly after nearly 17 year off bloody god dam pain in butt...I've no doctor that helps OE cares...helps when got one that carers i feel like a pain when go...my dad at age of 55 past last year..the affect on me .kids..been bad..no..I am on morpie does nothing..on it 3. Times a day..can't sleep though pain that's getting me..so bad tempered at min.. I've told them to cut my legs off if will stop pain in legs feet..then just have hips elbows.neck.to feel pain from..no but can you change doctors?? I can't ...no one understands. Pains bad.. can't see it..begged doctor this morning to help..gave me gabapentin????so tired can't sleep they won't..even send me rumo..knew I've arthritis in lower spine...waiting for upper scan..it helps if knew what dealing with

[lewis08 in reply to Reykua]

Hi reykua,thought would let you know that ive been on a few diff. drugs and nothings helped...in fact worse..on wsting list for pain clinic and have an appt for maxillo facial clinic next month as i have damage to my mouth,teeth and facial bones and other stuff,too many to mention,suffering alot but i am trying to stay positive??hope your not having too much of a bad time?...kind regards....jan...

[burto1]

Thank you. I hope you get the help you need too.

[Fedupwithmybackpain]

Hi I have read the threads below, I feel for you, you are not alone, I am in similar situation the meds are not helping,side effects are really bad. I take a new med Tephine it is not much better so I take it sometimes and stop it sometimes as I am worried about the side effect ie itching and mentally mixed up.Also due to have an op soon, doc cannot guarantee that the pain will stop, I will go ahead with it anyway as I have nothing to lose.

Keep positive, pester you GP and come on to this site often sending you positive vibes

[lewis08 in reply to Fedupwithmybackpain]

Yes ive pestered docs so much but still no joy,writing a diary of how i am feeling every second of it,hell on earth and find this site helpful,very kind people,good luck with the op,finger's crossed for you.

[Fedupwithmybackpain in reply to lewis08]

Relaxation techniques might help, deep,breathing, perhaps hot and cold compress maybe tens machine, a lot of trial and error, we are all with you.

[lewis08 in reply to Fedupwithmybackpain]

Thanks hun,got a relaxation dvd or 3,not to take pregablin as been choking etc,was talking to NHS24,maybe allergic?thanks again for words of support.

[Hidden]

Dear Lewis08, Im sorry for your pain . Gabapentin made me very very depressed and pregabalin was ok but made me fat. Over years and working with pain consultants I've come to a combination of meds that, mostly, work. Paracetamol, tramodol , morphine slow release, And 2 anti epilepsy drugs used off licence (commonly) for pain, especially neuropathic pain: Oxcarbazepine and Topiramate. So don't lose hope. If you don't shut down your pain with medication the pain pathways will establish themselves more strongly and your pain will get worse. Do try to get a referral to a Pain Clinic where an anaesthetist will deal will your meds. They have quite an armoury as well as injections etc if they think those will help you. Good luck.

[lewis08 in reply to Hidden]

Thank you..meant to be at a pain clinic months ago,so much going on i forgot(so have they by the looks of it,that pregablin helps nil,pains came back worse than ever,other stuff from gabapentin that's doing my head in now,been to pain clinic before,not good.

[Hidden]

Get off the Gabapentin fast. I hope you don't mind my saying I think it is making you seriously depressed, a common side effect. Then please read my first reply again. Nowhere have I suggested you continue with these meds that don't suit you. However you should come off under medical supervision. Good luck

[lewis08 in reply to Hidden]

Im off gabapentin taperd slowly,on pregablin,worse and just gonna take one dose today,and yes am depressed,frustrated more,i know you did not suggest,what i will say is no one would believe the things that have happened to me being on that mental gabapentin,anyhow thanks for trying to help.

[Hidden]

PS in your state of mind your are going to find every ing negative. It is the Gabapentin and the pain. Get a 2nd opinion from another pain clinic and make sure you get referred to the consultant. If you do nothing you won't feel any better.

[mitziblue]

Sweetheart if possible see a pain specialist. It makes a world of difference. Best of luck!!! xxxx Mitzi

[lewis08 in reply to mitziblue]

Thanks hun,had to stop pregablin,phoned NHS 24,maybe allergic?will defo see a pain specialist,many thanks again xx

[louiseamos]

Hi lewis08.. I knew how you feel..really..them bloody doctors are crap were I live..I've joint pain.back props.shooting pain up all joints..neck shoulders killing..have a crawling feeling all over.. can't sleep past 2 am..went doctors today..gave me gapbentin.. need pain killers..sleeping meds..just wanna sleep......physio won't touch me..has my bones in back are not straight he said???? 2 month ago were many to send me rumo..I feel your pain

[helenalmond150450]

hi

sorry your having so much pain, had 3 back ops myself and know how you feel, i'm on a load of pain relief ( diclofenac, tramadol, paracetamol,oramorph, transtec patches ) including gabapentin, which gives some relief from nerve pain, have been told consultant won't operate on my back anymore because iv'e got osteoparesis. i was sent to physio for my spine cause its curved and they started treating my knee, so physio a waste of time. are you on oramorph because that's very good when you take it with other drugs but only take on a night as it make's you very drowsy, but iv'e found it helps with nerve pain and lets you have a few hours sleep. if you can't take gabapentin during day ( my daughter can't cope with it ) just take it on a night if possible and it does help.

hope this helps

[lewis08 in reply to helenalmond150450]

Hi,gabapentin was giving me so much side affects after 8 months and many visits to docs (who i will be changing very soon) tapered my dose,was down to 450mgs a day and pain so much worse i went into withdrawel at weekend there,didnt know about this and was crawling the walls,had'nt even taken anything stronger than paracetamol,now im fighting the docs as right this minute an appt i had with lady doc,had bloods taken asked me to make app for her today,other doc just cancelled it,hell pain hell docs,now i'm at a loss and so frustrated,thanks for responding and not in too much pain.