leg pain really wearing me down(spondylolisthesis/lumbar stenosis/facet joint arthritis/chronic pain )

Hello fellow painfriends :) i am strong , i can cope with pain,i use many tools and do not stay in bed all day or on my butt..BUT ..I'm tired , I'm worn out and yes getting down ,with this constant pain from my back to my feet,an aching burning soreness with sharp hung up-ness that never leaves ,no pain meds touch it they just make me woosy which is probably what they are best at ..chilling me lol.(gabapentin 3 x 3daily + cocodomal 3x2 daily) But in all seriousness I am not sleeping properly,waking 3-4 times.My leg wakes me with grabbing/cramp like pain and numbness . Every step ,every bend is painful.Im having to go up stairs on all fours most days.Shopping is only possible when im leant over a trolley and with assistance ,or online lol. I Know the gist is its nerve pain, signals being sent that shouldn't be ,BUT that doesn't make the pain any less .I want to work but I can't guarantee one day to the next how tolerable my pain will be .Not much good for an employer ! Im lucky if i can do my own household jobs. i am worn out from it.

Latest Mri shows no further deterioration from my fall in 2009,its just nerve damage.

I was so active,walked 5-7 miles a day in my job as a dog warden,went to the gym 3+ a week ,did weights,swimming,cycled all over the place. I can't swim proper strokes any more ,Ive tried doing gym exercises in the pool and it irritates things making it very painful. I do go out on my bike for 30 mins when I can as cycling hurts less than walking ,I have made many adjustments to my cycle to make it as comfortable as possible, I use a swiss ball and bands as much as possible at home and a mini cycle (feet only thing)to stay active..but the pain is constant and any activity increases it.

I am so down ,my life seems to gone tits up and as hard as I try ,my motivation just disappears . :( I just don't know what else I can do. I have worked my whole life and I cant get used to not doing so .

ok rant over :)

love and best wishes to all x

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23 Replies

  • Hi the nunn

    If I gave your message to my husband he would have said I had wrote it. I have tried lots of pain meds latest one being fenytel (don't know if I have spelt it correct ) pain patches these I had to take of after 9 days due to swelling of my feet side effects not good. My doctor sent me for kidney, liver and glucose blood test. I don't drink alcohol but my liver test came back as abnormal test don't know if it's due to medication or diet retest in 6 weeks time. Something else to worry about. I have private physio every couple of weeks accipunture , massage and manipulation but that's not working any more been having that for 18 years. That's my rant over janet xx

  • Hi thenun, sorry you are feeling so low are you under the care of a pain clinic to help you?

  • I know what you mean about not knowing one day to the next it is difficult for employers but I think you just have to keep changing the meds until you find what suits you, I didn't realise that I was slipping back into depression through being at home and in pain but decided to try the amitriptyline which is anti depressant and pain relief, it did seem to work the first day. I was even pulling weeds out in the garden yesterday, but today feel stuck mentally and physically indoors. But you have definitely encouraged me to get out and try cycling. One day at a time is what they advise. And I have also been told not to dwell on what you used to be able to do, just do your best today and remember the body is constantly trying to fix itself naturally, so you may be able to do more again in time.

  • Hi you are in a bad way and are in need of some good quality sleep. Are you attending a pain clinic? You could benefit from injections to give your body a bit of rest.Its very difficult to stay positive when you are in so much pain I feel for you and know the pain you are in is getting you down. You are strong and can cope,don't give up. Will be thinking about you.xx

  • Hi all and thank you :) I have been to pain clinic and in all honesty ;as nice as they were; everything we did I'd already done lol.

    Teresa,I have also read that and I do agree with and do try to live by it,as you know ..there are just some days :).

    Anyway today I went to my appointment with a health advisor , a free service via the council that I found online. I felt what I need is a kick up the bum , someone to be accountable to,and we've set out some goals..mini ones ..so I now feel :)))

    Who was it who said ..when life gives you lemons make lemonade ..lol

    best wishes to all fellow pain pals :)x

  • Nun, I have what you have. I'm not convinced pain in neuropathic and firing off the wrong signala. In fact my pain is said to be mechanical. Tight muscles cause pain too! Don't do strenuous exercise if it causes pain. You can't "work through" this kind of pain, especially not stenosis. If you are going to exercise or stretch, get a professional to draw up new exercises tailored to you. Pain Management put our whole group on the same, result was, I destabilised my sacroiliac joint. Sounds like you need to return to square one and start again, something we all do, disheartening though it is.

  • You are doing a fab job by staying active and staying determined. Even though we are strong pain wears us all down at some point and it's nothing to be ashamed of. I'm now on a cocktail of 1500mg of gabapentin a day, 200mg of tramadol, 500mg of naproxen and 30mg of duloxetine. It makes me drowsy but starting to get some benefits some days! I have also been recommended to try mindfulness for pain. There is an ebook for £6.99 on amazon. It is a fab read I have only just started and do find it hard to get into a new routine but it's worth having a look into to try a different tact!

    Good luck

  • Take care on those gabapentin trish , I know we all react differently but after 12 months of high dose like yours I started getting some horrible side effects, I didn't care at first because they numbed the back pain and I could exercise at the gym which I thought would help, as the doctors always say "strengthen that core". But my legs went so numb I couldn't walk at one point, restless legs at night, insomnia, band headaches, weight gain I was constantly hungry, crying, then the suicidal thoughts which I know was the drugs not me. I came off them slowly (which is very important) and felt much better. But Pain is back now trying other things that suit me better. I suppose all of our bodies are different and the way we feel the pain, but keep going with whatever suits you but if you are not feeling quite right beware it could be a side effect. I am doing some meditation and exercises on YouTube now. Just had second MRI scan so we will see what the next step might be. We have to be so patient with pain, but it think the body is gradually fighting it naturally and fixing itself.

  • thanks I will definitely find the book :) my you are on a cocktail ! :) I hope they are helping and you have more good than bad days xx

  • I'm so sorry to hear you're feeling down. I know that continual pain wears on a person in a hurry, and it seems changes in weather (humidity, cold, etc) intensify the effect. You might ask your doctor about a possible anti-depressant to help you cope mentally with the difficulties. Please don't let it go too long that you're severely depressed before asking for help with it! Personally, I attempted suicide a few years ago and still have times I'd like a way "out" of this misery. Chronic pain sufferers have a psychological curve to deal with also...especially when it hits later in life and you can no longer live as you used to or do things you could do before.

    I did not have success with Neurontin, Lyrica, etc...but I go to a new pain clinic now and can get Toradol injections (it is short-lasting relief but is a nice break from pain), also I just had my first Lidocaine IV Infusion that DID help with the pain for about 9 days! I "might" try it again as the Norco isn't working very well (dose is too low and infrequent) and the doctors are so wary of prescribing it all the time that I feel like I'm "begging" for it each visit, lol. Maybe some of those things would be options for your pain?

  • Sweetheart, I feel your pain. I have ruptured disks and fibromyalgia plus really bad feet as I have NO fat in the bottom. I went to a pain clinic and they gave me Opana ER, which I doubt I could live without. It makes life bearable at least. I hope this helps you!!! xxx Mitzi

  • Sound very much of what I am going through, I was finished work on health grounds some years ago, I was still in my forties. I took badly to this and became very depressed. I also do as much as I am able, its just a matter of pacing myself and I have learned not to over do things. I am now on a long, long waiting list to attend pain management, watch this space lol

  • Sorry to hear you had to give up work, that must have been hard for you. My advice with waiting lists is to keep badgering them, well in the uk anyway, not sure how it works elsewhere. I even wrote directly to the consultant and got a reply within a week, followed by injection, for my back. If you don't shout loud enough they assume you are managing ok. I learnt this when I had carpal tunnel syndrome, they did some tests and the hospital doctor explained that it wasn't bad enough to need the operation, I was gutted, I couldn't work or drive or ride a bike, but she insisted it wasn't bad enough. So I went back to my GP who wrote to the hospital and hey presto I got a date for the operation, not even a consultant appointment just straight through to the op. So keep on at them, I say.

  • Hi many thanks for that, I will bare that in mind, I was told by consultant yesterday that I am not the right candidate for trigger point injections, as I have pain in too many places instead he has increased my medication. I the meantime I will pester my G.P for pain management, which is now to be done in the community, I cant help feeling that I am being fobbed off, thanks again

  • yes pester pester pester :) sadly in the UK it seems to be the only way . Stay strong x

  • hi, I know exactly how you feel. I have had lymphodeama for 14 years and chronic arthritis for 4 years. cannot do stairs, had to move to ground floor flat. cannot use a bath, have wetroom now. I take naproxen 8 times a day, at night I take amotryptoline which makes me sleep pain free, but woozy in morning. but they do help!!!!!!!!

  • I am hoping to come off tablets at some stage but trying to give the doctors a chance not to test them but to see if their advice helps I'm only 25 so I have many years of CRPS to endure yet so plenty of time to experiment with lots of different things. And yes I do get side effects from all the different tablets in different ways which I then adjust to n they wear off slightly luckily no weight gain and I keep an eye on several things with my partner being fantastic and helping me see the bigger picture of how things are effecting me as do my friends and relatives. Socialising seems to get harder and harder though with friends trying to understand but getting fed up when you never make it to see them or are asleep when they call after a day at work! Finding this forum has helped me a lot so thank you to you all

    Take care

  • Excuse my ignorance but what is CRPS ?

  • Hi have you tried acupuncture ? It did help me in the short term, also aromatherapy I am sure there is other treatments, I believe its trial and error. Also, a friend of mine who also has fibromyalgia advised me to let people know how you are feeling, having said that others who do not understand tend to keep away. I am pleased you have an understanding partner, are able to swim? If you are up to it perhaps you could go with you partner, or friends, its just an idea, hope all goes well for you.

  • Sorry complex regional pain syndrome I can explain more if you haven't heard of it


  • I would have said that your spine has lost stability (Lumber) It probably a

    little bit of steno sis is going on. or narrowing of the spine. The mri is

    not real great at showing some things because you are laying down flat.

  • OMG_!!!I found my twin!! Hello the nun sorry to hear from you in such pain.I hope you can find some pain relief .

    I'm reading all of your post and realize I'm really not alone although I hate to know someone else is suffering from the same pain.

    This is no way this is a way of life.Oh my goodness we don't deserve this at all.That's what I ask myself. I started to have my pain journey about a year now ..first it was with headaches that were so extreme and wicked shooting pain all the way to my toes.my face went tight and numb/head/jaw/chest /legs and now its the right leg where I can barely walk on it .the pain is so intense I believe that I may have a blood clot.. I know its nerve pain however I find myself now constantly looking for varicose veins and I almost have myself mentally convinced that I have clots.

    I've had in total in the last year alone 5_ct scans and6 MRIs and guess what all fine.seriously I am not going crazy.. However mentality wise and physically I'm super drained like you.this had really taken over my body and my life entirely ad much as I try to keep positive and have a healthy lifestyle its next to impossible. I too do get out of bed because I work from home.thank goodness and I'm still having a tough time. My ribs are now hurting I'm on no meds yet still after being taken off lyrica/gabapentin from the leg cramped up really bad and the Dr said side effect and told me to stop.appointment tomorrow morning to find out blood and other test results one being a test for my throat checking for infections/nose plugged always and feels hard to breath certain times /like chocking sensation. Oh well I could go on and on but you get the picture.. Actually I just wish I could have just a day or two a week without any symptoms and pain free.wanting this for us all .

    Take care of you.

    Gentle hugs


  • Hi

    I am in the same boat as you and what you are going to hear is bad news

    I have been push from doc to doc for 5 year with back pain and with the NHS the way it is you have a long wait

    but there is a drug called Palexia you can get most doc ill not give it out due to the cost look it up on the net .It has a lot less side affects than all the others out there and this one works .

    I have been on t for 20 weeks and feel great . lots more to say to you about this please email me at davidsamrichmond@hotmail.co.uk I know I can help you


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