Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!

Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!

Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you.

First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose Fludaribine over 2-CDA. In discussion with Dr Freireich I asked, if Fludara was unsuccessful, could I take 2-CDA? He said no. I then asked if 2-CDA unsuccessful, could I take Fludara, and he said yes. With this, I opted for 2-CDA. He went back to their "round-table" and sold them on allowing me 2-CDA. (This was at a time dosage of Fludara was experimental, and mortality was not good)

2-CDA was treatment of choice for hairy-cell, but experimental for CLL. I took the 2CDA and got a remission followed by MDA, where I saw Dr's Kantarjn, Wierda, as well as Freireich.

A few years later I married a MN girl, so moved to Rochester MN, home of Mayo. There I saw several Drs finally settling on Dr. Neal Kay. Eventually, and before I saw Dr. Kay, I again was given another sequence of 2-CDA via MDA protocol. About 10 years ago I received Rutuxin, 2 courses, and about 5 years ago I received FCR via MDA protocol.

Currently living in FL and being followed by Dr Chanan-Khan at Mayo, in Jacksonville.

Still hanging in. Guessing if/when needed, I may see Ibrutinib.

So, you now have an abbreviated story of someone who has lived with CLL for nearly 38 years.

Best to you and yours.


Doyle W. Garrett

Last edited by