CLL America from Patient Power
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Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!

Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!

Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you.

First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose Fludaribine over 2-CDA. In discussion with Dr Freireich I asked, if Fludara was unsuccessful, could I take 2-CDA? He said no. I then asked if 2-CDA unsuccessful, could I take Fludara, and he said yes. With this, I opted for 2-CDA. He went back to their "round-table" and sold them on allowing me 2-CDA. (This was at a time dosage of Fludara was experimental, and mortality was not good)

2-CDA was treatment of choice for hairy-cell, but experimental for CLL. I took the 2CDA and got a remission followed by MDA, where I saw Dr's Kantarjn, Wierda, as well as Freireich.

A few years later I married a MN girl, so moved to Rochester MN, home of Mayo. There I saw several Drs finally settling on Dr. Neal Kay. Eventually, and before I saw Dr. Kay, I again was given another sequence of 2-CDA via MDA protocol. About 10 years ago I received Rutuxin, 2 courses, and about 5 years ago I received FCR via MDA protocol.

Currently living in FL and being followed by Dr Chanan-Khan at Mayo, in Jacksonville.

Still hanging in. Guessing if/when needed, I may see Ibrutinib.

So, you now have an abbreviated story of someone who has lived with CLL for nearly 38 years.

Best to you and yours.


Doyle W. Garrett