I wonder if anyone could help me... For several months now I've had terrible fatigue but all the normal blood tests (thyroid anaemia, celiac disease, diabetes etc) came back normal. I can barely get through a day, despite sleeping a good 8 hours at night, i always need a sleep for a few hours in the afternoon too.
Two weeks before I turned 30 I was diagnosed with an extensive deep vein thrombosis in my left groin, abdomen and upper thigh. There was no apparent cause for this (non smoker, young, active, no periods of immobility, not pregnant, no family history etc., and no blood clotting disorder that they could find).
My abdomen swelled up a lot, so that I can't fit into my old trousers, but the doctors seemed unconcerned by this.
Last week I ended up in hospital with severe pains in my left and right sides, where my ovaries are, and abnormal vaginal bleeding (heavy, clotting and my period was not due for 2 weeks). The pain is there as a constant ache, and then suddenly it will stab me and make my cry out it's so severe.
They (gynae department) did a pelvic exam & couldn't feel any masses. They did a transvaginal ultrasound and said that everything was normal, but they also said they couldn't see either of my ovaries because they were obscured by my bowel. They said they thought it must be something to do with my DVT and that the bleeding was just a 'red herring' and a coincidental weird occurrence.
The vascular team did a CT to look at my veins (they didn't look at my organs, just the vascular team assessed the pictures) and said the DVT was still there but getting better, and that it did not provide an explanation for the pain or bleeding. So they referred me back to gynae , who just discharged me with some pain killers.
I'm a bit worried about ovarian cancer, because I know that 10% of patients with unexplained DVT are later diagnosed with cancer, and that ovarian is one of the cancers associated with DVT. Also I've had the symptoms of fatigue, and also night sweats for a good few months, as well as strange IBS symptoms, a lot of gas and seemingly alternating diarrhea and constipation. The doctors really seem unconcerned about this and are not keen to do any further scans.
I know I am only 30 and ovarian cancer is rare in my age group, but then so is an extensive DVT for no reason. My great grandmother and great aunt both died of ovarian cancer, but they were quite old when they died. I am just wondering whether I should be reassured by the ultrasound scan not revealing anything, seeing as they couldn't see my ovaries on it. Is it really possible that they can have ruled out anything wrong with my ovaries without having seen them? I'm just wondering whether I should pay privately for an MRI scan, or what the best course of action should be. I know i should trust the doctors' opinion, but I just feel that no one is looking at me as a whole, assessing all the symptoms, but rather treating each individual symptom as one thing at a time. Any advice or help would be much appreciated. Thank you!