Hi ladies, recently we were chatting about brca one and two gene mutations. It appears that lots of us have been tested positive for this, as so was I last year.
The genetics team were marvelous they explained it all to me until I felt like the expert however, now I am terribly confussed. The gentic team referred me to the breast clinic in Addenbrookes hospital last year. I had a mamogram and some dodgy looking cells were found in the right breast. These were drilled out and turned out to be nothing to worry about. At first I was put on a drug called anastrozole???? I think, its a sister drug to tamoxifen.
Then 1 1/2 weeka later I was taken off the drug and informed I didn`t need it.
I never questioned why.
Now, recently a friend who is training in oncology at Addenbrookes hospital told me that tamoxifen and similar drugs are offered to high risk breast cancer patients (brca positive patients). I talked this through with my oncologist and she started to investiagte for me.
I have recieved a copy letter that she has sent to my GP and in this letter it states that according to the breast clinic I have no higher risk of breast cancer than the general population.
Thankfully, I do have my next appointment at the breast clinic next week but I feel so anxious waiting.
Also the breast clinic locom who I saw a year ago told me I had a second primary cancer of clear cell in my uterus and because of this they didn`t feel that it was safe to keep me on the breast risk reducing drug.
I queried this with my oncologist last week and she said this was not the case at all. I had mixed cell type in my ovarian tumour, one of them being endometrioid.
But I am still very confussed about my breast cancer risks - checking back on my letter from genology the risks are high and they are life time risks.
Next week won`t come soon enough let me tell you, few rant over from a very frustrated Tina xxxxx