Rising CA125

[0151tmac69]

I had CT scan in February and it was clear however my CA125 is at 92 been slowly rising it worries me. Im getting bloods and CT scan every 3 months. Anyone been in same position?.

[DianaPrince_]

I am.

Diagnosed Dec 2019. Stage 3b. Debulking surgery, 6 x chemos (carbo taxol). 2 years of Oliparib.

A year after finishing the parp, my very stable CA125 began to rise, slowly.

From 6 to 8.

Then to 11.

13.

22.

I didn't ask what the last number was at my last appointment.

Every three months I have a scan.

I've had 3 in a row.

All have been clear.

My CA125 been slowly but steady rising for almost a year now.

So I think it's back (while hoping it's not).

My next scan is the end of May.

Which I'm not thinking about, apart from the hours of 2am to 5am when my anxiety likes to run all the worst-case scenarios on a loop.

[0151tmac69 in reply to DianaPrince_]

Thats still low anything under 43 . I was on olparib for 2 years and kept low highest was 12 then i had virus and a fall since then it rose to 24, 48, 60,90. My mind is on overload worrying.

[Lizchips in reply to DianaPrince_]

In the US they say anything between 0-30 is normal. My CA has been a 7 for ever, my Dr always told me if it doubles, we are doing full pet scans and cat scans. Then going from there. I was really exhausted, when diagnosed, I figure if it comes back I will be exhausted again. Prayers 💜 Liz

[Survivor-thank]

In the same boat . It’s so frustrating. However have learned to live life 3 months at a time . Enjoy every bit of life between the blood work and scan and stop stressing

[Saintgermain]

Mine was rising didn't show up on a CT my onc did pet scan showed up followed by biopsy same subtype has I had when originally diagnosed.

[javeryduggan]

I was first treatedin 2016 for stage 3c. Ca125 5 or less until 2 years ago. Started to rise but CT’s stayed negative. I entered a keytruda trial once it was over 75. For a year CT’s stayed neg. Ca 125 stayed under 100. Then ct showed enlarged lymph nodes in the thoracic area . Just finished 8 rounds of carbo/taxol. Worked great and I’m on every 3 week maintenance avastin and starting to grow my hair back! Woohoo

Good luck with your future CT’s. Hopefully they will do a pet scan too. You can do this if you need more treatment. Scary but I’ve met many who have had only one recurrence.