Tremors

[Alpacalama]

Hi everyone I just pop on now and then to see latest updates from you brave OC warriors.

I will be a year NED next month after all treatment. Since treatment I’ve developed high BP, high cholesterol, low thyroid taking pills for all above reluctantly. Recently I’ve developed new problem … tremors! Knees and feet initially now it’s in hands. Difficulty typing this, and often eating, can’t attempt peas!!

Has anyone else had this or do you think it’s totally unrelated?

Should I mention it at next consult in Jan?

Because of vague nature of symptoms before diagnoses I have a complex about being thought of as hypochondriac.

Pauline xx

[Jud15]

Dear Pauline, Really good news being NED. I wouldn't worry about being considered a hypochondriac at all. I think it would be a very good idea to mention it to your team, perhaps even before your appointment if that is later in January. Always good to get things sorted out and not have to put up with them. All the best Judith

[Alpacalama in reply to Jud15]

Thanks Judith for reply. I go on 11th to hospital app so not long to wait. I can put up with it until then. If it gets worse I’ll try to see gp. X

[Lyndy]

Not being able to eat properly is a red flag for your well-being…so report this symptom please! You are not a hypochondriac you are a survivor! xx

[Alpacalama in reply to Lyndy]

Thanks Lyndy, it’s not there all the time but becoming more frequent and if it wasn’t happening while talking to Dr that’s when I feel awkward as though I’m making it up. My husband is always with me though so he can verify and describe what he sees. He’s good at making sure I don’t leave anything out!!

[Motiva]

Yes speak up and say what is happening and let the specialist decide why it is happening. Any symptom may be significant and an opportunity for intervention. We are our own best observers. Fx

[meadowgirl]

Dear Pauline

This sounds like a new symptom and should be reported to the team. Do you have a good relationship with your CSN? I would be inclined to run it by her and seek her advice. If not then I would encourage you to go and see your GP. I know from experience that not all problems are related to our OC, especially as you are NED.

Suzie x

[Alpacalama in reply to meadowgirl]

Hi meadowgirl, I’m thinking my local pharmacist or GP will be first port of call as I’ve only spoken to CNS a couple of times with my first cycle of chemo when I was so sick and fainting. It seems so long ago now! I could prob wait until next onc app 11th Jan as I don’t think much will change in a few weeks. I’m otherwise fine at mo. 😘

[Ruebacelle]

Yes. Report

[Alpacalama in reply to Ruebacelle]

Thanks will do. X

[Willowsmum51]

sorry to hear you’re having a rough time! What meds are you on? Steroids really give me the shakes as does metaclopamide! I would check the side effects of any medication you are on if it’s not meds, definitely speak to your team. Hope you get some help and relief! Take care, J xx

[Alpacalama in reply to Willowsmum51]

Hi there thanks for reply. I was wondering whether to chat with my local pharmacist as she’s better with drug interaction etc than my GP! I’ve just started statins for high cholesterol but was expecting muscle and joint pain rather than nerve. I’ll keep you all updated if I work it out. X

[SopSinger]

I'd start with the GP. We tend to forget that cancer doesn't make us immune to "ordinary" ailments, and this might be something different. Or it might be connected to neuropathy, following chemo. If it's a new symptom impacting your quality of life, it needs to be investigated. Sending hugs!

[Alpacalama in reply to SopSinger]

Thank you I’ll probably give GP a ring. I did have a bit neuropathy when first started Bevacizumab/Avastin but that went so this is something new. Hugs returned!

[Pixiepurple]

Report it for sure. Just think its their job to look after you & to keep you well. Congrats on NED x

[Alpacalama in reply to Pixiepurple]

Thank you I’m going to. X