excited to share update...

[Goodgirl98]

I had the debulking surgery March end of last year and hence was asked to do PET CT scan full body by my surgical oncologist this month (since it will be 1.5 years today). I did the test day before, got the result yesterday and met my onco today. Except for one observation about increased FDG uptake in the soft tissue of the abdomen close to the umbilical cord, I am ALL CLEAR!!! Was so so relieved that my lungs were ok.

The area where the fgd uptake is seen is close to my operation area and hence is likely to be inflammatory in nature. The report says SUV rating is 4 and the activity is in the soft tissue of the abdomen. So doc has asked to come in for another clinical examination next month just to be sure. Hoping it is nothing but overall so so pleased with my report... just had to share. I have been manifesting an NED report for so many months and happy that it came close to that 😃

[iqbalmel]

Congratulations on the great news! Thank you for sharing your experience.

During initial chemo, between the 3rd and 4th cycle, my abdominal incision opened up about ~1 inch x 1 inch. I had a PET CT scan after the 4th cycle and it showed 20 mm of soft tissue below the umbilical cord of FDG activity 10.2. On the next PET Scan, 2 cycles later, it showed "decreased size with SUV of 9 units". The opening itself had decreased about 50% in size, all other areas of concern were gone and my CA-125 continued to drop.

I asked my oncologist's office and they said it could be due to inflammation but would continue to be monitored - I have another PET CT in November and am on Avastin and Olaparib. My wound is completely closed now.

[Goodgirl98 in reply to iqbalmel]

Thank you! And thanks for sharing your experience. Hope you have an uneventful pet ct result (or as my doc likes to say when I have good results-it's plain vanilla)! Can I ask a follow up- did you have all the chemo cycles after the surgery? Is that why you had an incision during the chemo? My debulking was after the 4th cycle followed by 2 more chemo cycles. Also adding that my post surgical recovery was "plain vanilla", I thought my wound was well healed so was a little surprised by that one result today

[iqbalmel in reply to Goodgirl98]

Thank you. Yes, I did.

[Goodgirl98]

You are so right. Weight lifted =teary eyes. Thank you so much!

[Lyndy]

Brilliant results Goodgirl98… and breathe!

[Goodgirl98 in reply to Lyndy]

Haha... thank you!! And exhaling 😃❤️

[0462County]

Brilliant news x.

[Goodgirl98 in reply to 0462County]

Thank you ❤️

[A1r1t]

Thanks for sharing, we all love to hear positive news on here 🤗 ♥.

[Goodgirl98 in reply to A1r1t]

Thank you!

[Newbery3]

Wonderful news! So so happy for you 🥰🙏positive thoughts work! X

[Goodgirl98 in reply to Newbery3]

Thank you! Yes, positivity works but it is also hard work.

[Beaver54]

that is fantastic news. So pleased for you. wishing you continued ned. xx

[Goodgirl98 in reply to Beaver54]

Thank you for that lovely wish ❤️

[Frenchhouse3]

So happy for you! Xxx

[Goodgirl98 in reply to Frenchhouse3]

Thank you so much

[Jholly4]

Great news.

[Goodgirl98 in reply to Jholly4]

Thank you!

[Motiva]

Fabulous news and nice to have it delivery so promptly. NED is a small acronym for a huge achievement 😊

[Goodgirl98 in reply to Motiva]

Beautifully put...

and yes, the report delivery is very prompt. There are many things I complain about my country but the speed of diagnostics is not one of them! Completely alleviates the waiting anxiousness.

[bananayo]

Great news so pleased for you xx

[Goodgirl98 in reply to bananayo]

Thank you

[Rexrescue]

It is so good to hear your fantastic news, long may it continue

[Goodgirl98 in reply to Rexrescue]

Thank you!

[delia2]

Congratulations! I feel so much more confident about PET scans. I wish they were used regularly here. You’re doing great!

[Goodgirl98 in reply to delia2]

Thank you! Yes, I was getting anxious that I was getting to the year and half mark and my doc had not brought it up. And then when he did, I jumped at it and took the test that same week 😃. Now with that one little remark on the soft tissue inflammation, I cannot wait when he would recommend the next one. But it is a costly test here, even with discounts.

[delia2 in reply to Goodgirl98]

I don’t think a 4 is anything to worry about, really. You can google it.

[Leniko]

That is Grrrreat News!!!!

[Goodgirl98 in reply to Leniko]

Indeed. Thank you for sharing my joy!

[Alpacalama]

That’s great to hear! 🥳 Like you I had debulking surgery March last year 23/3 CT at end of chemo showed small amount around stomach visible. Deep node in chest disappeared with chemo. CT in Jan & June this year NED. Bevacizumab and Olaparib done its job. I’ve my next appointment 2weeks so hoping all well. I’m not sure if they’ll do another scan. Still have fatigue and get breathless at least thing so always a worry that it will recur in chest.

Hoping we both carry on with positive outcome and everyone else battling this!

Love all support we get here. XX…

[Goodgirl98 in reply to Alpacalama]

I wish you the very best for your appointment and for continued NED 🫂

[Pianoplayer731021]

Wonderful news, so happy for you. 😊

[Goodgirl98 in reply to Pianoplayer731021]

Thank you!

[Norelo8]

Absolutely brilliant news !! 🤗😘

[Goodgirl98 in reply to Norelo8]

Thank you 🙌