Feeling desperate as platelets won’t rise - My Ovacome

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Feeling desperate as platelets won’t rise

Bluetilly profile image
17 Replies

please please has anyone experienced this: on Niraparib my platelet count dropped and I had a transfusion in hospital. That was last Monday and i have had another transfusion since then . After the transfusions the count goes up well, then falls again and my count just won’t go up on its own but keeps going down. They need to see it rise before I can go home. I am so so depressed and upset and I can’t see the count ever going up again. Please has this happened to anyone else? And how long could it take?

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Bluetilly profile image
Bluetilly
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17 Replies
Lovedogs41 profile image
Lovedogs41

Hi

I used papaya leaf extract 1000mg 3 times a day and ate pomegranate seeds everyday to bring up my platelets.The doctor was naturally v surprised how well it worked for me! Worth a try if the infusions aren’t doing it maybe

Bluetilly profile image
Bluetilly in reply toLovedogs41

Thank you for that recommendation Lovedogs41, it’s definitely worth a try. I shall have to get my daughter to buy it as hospital shop certainly doesn’t stock it.

Lovedogs41 profile image
Lovedogs41 in reply toBluetilly

Yes you will need a good health food shop try the pomegranate seeds aswell each day x

Mysticmeg123 profile image
Mysticmeg123 in reply toLovedogs41

Hi Lovedogs41 - I was told to so the same and ordered papaya leaf extract and like you, ate pomegranate seeds like twice a day. And, it brought my platelets up.

Lovedogs41 profile image
Lovedogs41 in reply toMysticmeg123

that’s great I’m so glad it worked for you too!

I always think it’s good when a natural product works instead of taking a drug with likely side effects.

N-A-58 profile image
N-A-58

are you having a blood transfusion or a platelet transfusion?

Bluetilly profile image
Bluetilly in reply toN-A-58

a platelet transfusion. I thimk the red celld are ok

N-A-58 profile image
N-A-58 in reply toBluetilly

my mums onc said platelet transfusions only last 24 hours. A blood transfusion is not as instant but it last 3 months and helps with platelets. My mums dropped to 5 at one point.

win_56 profile image
win_56

Please don't panic. The same happened to me. My platelets crashed on gemzar and went down to 6. I had an emergency platelets transfusion. Platelets would rise to about 34 then drop again, then rise again then drop again. This went on for about 8 days. My oncologist said this can happen and sometimes the body takes time to get bloods/platelets back to normal. It's back in normal range now but it did take a while.

Rosado22 profile image
Rosado22

I ordered Papaya chunks from Holland and Barrett and my hubby brought them into hospital when my platelets crashed. My blood platelets reading was taken twice that day and there was quite an increase. He also brought dark chocolate. I nibble pumpkin seeds daily and the papaya chunks. Eventually found the papaya leaf tea on Amazon but wasn’t sure re taking that. Hubby also brought in a carton of pomegranate juice and beet juice which I drink daily. I had blood test the other week and didn’t bruise so I’m guessing I’m okay.

Rosado22 profile image
Rosado22

Waitrose sell fresh pomegranate seeds - not cheap, Tesco sells the juices in cartons.

Mtngirl9 profile image
Mtngirl9

I had this issue while on a trial. I had to finally get on prednisone for a couple of months. I suspect they need to find the reason you can’t build up your platelets. I was ultimately removed from the trial.

Bluetilly profile image
Bluetilly in reply toMtngirl9

Thank you all so much for your hints and for sh

Bluetilly profile image
Bluetilly in reply toBluetilly

thank you so much, dear friends, for your hints and for sharing your experiences with me. It really is a great help xx

Summergold2 profile image
Summergold2

I do beet juice 4 oz in morning and night and 2 oz of wheat grass (tastes terrible) but went from 81 to 121 in a week don’t know if it’s because of the beet at wheat but beforehand I was always fighting to try to do anything to get platelets up as chemo would tank them

Bluetilly profile image
Bluetilly

That’s an interesting idea, thank you. Other people have also mentioned beet juice. So there really do seem to be things we can take thst help platelets

Rosado22 profile image
Rosado22

I ordered the wheat grass from John Lewis, surprisingly. I only took it for about four days as wasn’t that sure about taking it. My platelets had gone up. Went to chemo and they seemed surprised. I kept schtum and decided to just do my dark chocolate, pomegranate and beet regime for the rest of chemo. It wasn’t so onerous on chemo as I only really went for it when the blood test was coming up. I feel the need to keep the papaya chunks regime going daily, with the seeds - chia and pumpkin - bit of a chore!

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