CA125: Morning lovely ladiesJust wondering if... - My Ovacome

My Ovacome

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CA125

20 Replies

Morning lovely ladiesJust wondering if anyone knows anything about a 'normal' CA125 level, mine has now dropped to 9.2 and had my last chemo yesterday, CT scan next week then the agonising wait for my results. I have clear cell OC so CA125 results are not an accurate indicator.

Does anyone know the normal result for a women who has never had ovarian cancer, I know it has to be between 0-35

Thank you

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20 Replies
Caleda4 profile image
Caleda4

Hi, 9.2 is a very good response, anywhere between 0 to 35 is the norm. After 35 things are generally looked at more specifically. & over 35 and if the figure doubles.

You are definitely in the right ballpark and long may that continue.x

in reply to Caleda4

Thank you, hopefully coming to the end of my journey for now xx

ZenaJ profile image
ZenaJ

I think normal varies for everyone the same as the indication can be in the thousands, hundreds or lower. Mine has been 8 or 9 for 9 years now so I think you're well in the range. You're right that over 35 is not considered normal and should be investigated. Best wishes for the future. Zena x

in reply to ZenaJ

Thank you, lovely to hear yours has been stable for 9 years xx

Boot1947 profile image
Boot1947

Mine has been 12-14 for 9 years. It was 3,900 at diagnosis! Deb x

in reply to Boot1947

Wow! Great to hear your doing well x

Boot1947 profile image
Boot1947 in reply to

Thanks, Bunnyj. Just one of the lucky ones! x

carrotmunch5 profile image
carrotmunch5

Hi Bunnyj 😊 great news your CA125 dropped ., Like others say 0-35 is normal range. I too have clear cell OC, CA125 is always good indicater for me. Every time it creeps up, know that something is going on. Sending you lots of healing energy to your recovery! 🩷🙏🩷🙏🩷🙏

in reply to carrotmunch5

Thank you, especially as you also have CCOC, Its so rare which scares me x

Mariej2021 profile image
Mariej2021

I don't think there is a specific normal figure It is very individual as long as less than 35 An persistent increase seems to be what is looked for as a warning indicator

in reply to Mariej2021

Thank you x

in reply to Mariej2021

Thank you x

JustKBO profile image
JustKBO

im happy when mine is 12 and below. That’s good for me. 😀

in reply to JustKBO

Thank you x

Newbery3 profile image
Newbery3

Congratulations 👏 🎊 all sounds promising! Very good result x

in reply to Newbery3

Thank you x

Mommoo65 profile image
Mommoo65

Hi! Mine was 45 at diagnosis of High Grade Serous and stayed at 6-7 for 5 years. I have CA125 tested every 6 months. It tested at 85 in March 2020 and it was a recurrence in my groin. After surgery it went back to 7.2 and has stayed there. Next test is in August.

So my recurrence numbers are low compared to some but everyone’s ‘normal is different. Drs look at a rise over time. That tells them to get snooping!

in reply to Mommoo65

Thank you x

SopSinger profile image
SopSinger

As others say, normal is below 35. There are many different things that can cause it to fluctuate, especially in younger women, including any inflammation (even a cold), menstruation and endometriosis. Mine has fluctuated between 4 and 15 since my surgery in 2006. It was 680 at diagnosis and I've never had a recurrence.

in reply to SopSinger

Thank you, glad to hear your doing well x

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