I know it’s not just me in this situation but I was told on Monday that, after a year, Olaparib is no longer working. I’m grateful I can have second line chemo rather than worse case, nothing to be done, which I do appreciate some of you do have to deal with. My sister wanted to talk me through it. That’s the last thing I want at the moment, so I just said I’d rather not talk. Here’s the thing, her response was, “sure there’s nothing wrong though”.
SERIOUSLY.
I can’t say it to her because she wants to help. So I’m venting on you. Sorry. Gill X
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Guilane
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Hi, really sorry to hear that Olaparib is no longer suppressing your cancer. Has that been determined by your CA125 or CT scan or both?I can understand your frustration with your sister's response. After all it is you that has to live with this every day and ultimately make the decisions around treatments. I too find some relatives/friends make remarks that touch a nerve 😬 but I think they are sometimes at a loss regarding what to say and perhaps they say stuff before fully thinking about it??? I don't know your sister but perhaps she didn't realise how much it upset you?
Take care and wishing you all the best for whatever treatment plan you decide on. 🌹
Two scans and CA125. She doesn’t know how much she upset me. You guys do! My treatment plan has pretty much been decided by my onc and the MDT. I don’t really get a say. X
You should always have a say. At the end of the day you have to consent to any treatment or intervention on YOUR BODY. You need as much info as possible in order to make an informed choice. Good luck 🌹
I'm sorry about what your sister said, it completely lacked understanding; I'd have felt she was choosing to avoid what having to stop the drug really means, and saying 'there's nothing wrong though' makes it worse. I know what that feels like because I have an old friend who's kept her breast cancer in check for over 15 years with a particular drug; when I was in between chemo courses, she said wasn't I 'lucky not to have to take a drug every day'. Oh, if only there was a drug I could take daily for the next 15 years that would work and still be able to function, she seems unable or unwilling (or maybe incapable) to grasp my own situation...I don't speak to her very often any more,I think she's totally unable to relate with it. And I'm sick of explaining I am progressing slowly towards the exit gate, haven't bothered to tell her I've been told I've probably got less than a year left with or without treatment...I think people find it too difficult to deal with, that's why they behave this way, and though I understand it's hard for them, it's not supportive at all, is it, it kind of makes you feel alone. I hope any treatment they give you now is effective and not too awful to go through, best of luck with it
Thank you so much for your support and kind words Miriam. What we all wouldn’t give for 15 years just taking a daily drug! Again, though, I think if you’re not in our particular situation it’s hard to understand and friends and family haven’t been here so it’s impossible to empathise, however well meaning they are trying to be. And don’t tell us how brave we are! We all know it’s not brave. We have no choice. I’m so sorry to hear of your current diagnosis. I really am at a loss for what to say. Just that, we aren’t alone here, please don’t feel that you are. There are always friends here who understand. I hope any treatment you are having is tolerable, at the very least. Gill X
I can totally understand your feelings on the matter. People have often said to me that any of us could get run over by a bus any day, if I express worries about my future, as if that’s somehow equivalent to being BRCA1 and having OC for a third time. I think that nobody has a clue what we’re going though and what hangs over us. It’s likely that nobody can understand it unless they’ve been though it.
I also find it frustrating to see people wasting their lives worrying about ridiculously unimportant things when they have their health. Luckily I refrain from saying it to them, though. But it’s a constant temptation. 🤣
It’s absolutely shocking to learn that Olaparip is no longer working for you. I’m glad that you have options. I hope you get started on a treatment plan soon and that it’s not too harsh.
Thank you Anne. Kind of gives you a whole new perspective on life doesn’t it. Hang on in there, holding your tongue and thinking your thoughts. 😂 Yes, I did think Olaparib was the magic pill. And I’m very glad that it still is that for lots of us. Onwards and upwards. Gill. X
This is MADDENING! Sometimes my mother-in-law, a sweet, well meaning woman say, "But you're okay, right?" IDK what do you even mean?
You're being "at leasted" and it is not okay. It is okay for you to not be okay. This is upsetting. You wanted more, hoped for more, and now you are having to pick yourself up, dust yourself off, and do it all over again, not because you are brave and courageous but because you have no choice in the matter.
Protect your peace. If that means sending everyone to voice mail for a few days, do it.
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Feeling sorry for myself 
Just what I didn't need.
Will I need Wellies in Wales next week?
Do I don’t I - advice needed xx
sorry
