Oncologist has asked to see my mum

[Worrieddaughter95]

Hi ladies I posted last week about my mums worries over lack of post chemo scans and ongoing ca125 checks.

Her oncologist had mentioned that the following day he would be attending a session with professors to learn more about the latest data in parps and maintenance. As much as we were saddened by him not having much faith in them for her circumstance I do appreciate that he is always willing to learn from others and keep updated.

Anyways he has rang her today and wants to see her. I can’t imagine he would waste an appointment reinforcing what he said before so I am now wondering whether he has had a maintenance treatment in mind given this seminar?

Xx

[Lyndy]

That sounds positive…as you say he wouldn’t ask to see her for nothing. I am guessing Avastin or perhaps a Parp if she is within 8 weeks of finishing chemo xx

[Worrieddaughter95 in reply to Lyndy]

She is starting zejula as he said new evidence presented to him last week at a conference suggests there may be some benefit in the frontline setting xx

[Differentforgirls in reply to Worrieddaughter95]

I’ve heard this too. I’m on Zejula & have been for 2 years. It’s working for me & hopefully it will for your Mum too. It took a few months to get the right dose for me. Hope all goes well xx

[ZenaJ]

Sounds like there's some good news. xx

[Worrieddaughter95 in reply to ZenaJ]

She is starting zejula as he said new evidence presented to him last week at a conference suggests there may be some benefit xx

[ZenaJ in reply to Worrieddaughter95]

Let's hope so. I've never heard of it but there's lots on things on here that mean nothing to me as not available when I had OC. All the best with it. xx

[Rankij11 in reply to ZenaJ]

Niraparib

[Jayniiee in reply to Worrieddaughter95]

That is good news. I'm really pleased for you and your mum. I'm on zejula (aka niraparib). Just on the end of a message if you want to chat about it x sending positive vibes and best wishes xx

[Worrieddaughter95 in reply to Jayniiee]

Thanks so much ☺️ How are you finding it? X

[Jayniiee in reply to Worrieddaughter95]

Sorry for the late reply, I have only just seen this. I've been fine with it, other than sensitivity to sun, i just wear a hat. Skin is a bit peely on hands. They check on me weekly and thankfully I've had no nausea or rise in blood pressure and bloods have been ok. Hope you manage to sort things for your mum xx

[Realistic]

All sounds very positive Doctor's are always having MDT meetings to discuss our casesAll experts getting their heads together to talk about our cases and hopefully coming up with solutions for us all. Sounds like they found something gir her which is brilliant..sending love

& hugs SheilaFxxx

[Worrieddaughter95 in reply to Realistic]

Thanks Sheila xx

[SUE7777]

Sounds positive 🤞