Hello I has my first chemotherapy for ovarian c... - My Ovacome

My Ovacome

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Hello I has my first chemotherapy for ovarian cancer on Friday. Suffering with stomach pain and joint pain.

Helvelyn profile image
23 Replies

Just wondering if anyone had tried magnesium supplements or creams for muscle pain and whether it was ok to take on chemotherapy

Thank you xx

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Helvelyn profile image
Helvelyn
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23 Replies
Nicky100 profile image
Nicky100

Hello lovely,

Sorry to hear you are suffering a bit.

I would say that yes, both are fine to try.

Nicky xx

Helvelyn profile image
Helvelyn in reply toNicky100

Thank you Nicky. I will give it a try. Chemotherapy seems so much harder than the surgery xx

Nicky100 profile image
Nicky100 in reply toHelvelyn

I found Malic Acid help a bit.

You can get it from a few places and is fairly cheap.

x

google.com/search?q=malic+a...

Helvelyn profile image
Helvelyn in reply toNicky100

Thank you Nicky I will give that a try. I hope that you are doing well xx

Nicky100 profile image
Nicky100 in reply toHelvelyn

I am doing well fingers crossed thank you. Please do drop me a pm if you need any advice or tips. I would be so happy to help you day or night- I know it's a daunting task at the start.

Much love xx

Helvelyn profile image
Helvelyn in reply toNicky100

Thank you Nicky. It is really daunting. Just want to feel normal again.

Jayniiee profile image
Jayniiee in reply toHelvelyn

It is that for a few days after.. Sending you virtual hugs and healing vibes...Im on paclitaxel and carboplatin every three weeks but I can honestly say I feel completely normal for two weeks out of every three... Make sure you drink plenty

Helvelyn profile image
Helvelyn in reply toJayniiee

Thank you Jayniee. Stomach pains have eased a bit but constipated. Felt really emotional yesterday. First time since being diagnosed really. Just very tired and sleepy. Your post made me feel better though. How many more treatments have you left?xxx

Jayniiee profile image
Jayniiee in reply toHelvelyn

Hi Helvellyn... I know that feeling.. My emotions change just in a minute, but generally I feel quite positive -,I was in happy tears this morning when I found out someone with the same diagnosis as me (primary peritoneal cancer, which is treated the same way as ovarian) but i have stage 3 was still alive after 2 years - I'd told myself I had months. I'm doing visualisations, imagining the chemo kicking the cancers ass, that I'm shooting it with arrows and spraying all the cells with neutralising solution etc etc. When control is taken away from you taking back what i do have control over helps me massively, if you also want to try that if you haven't already?

I've been told I will have 3 to 4 treatments then a ct scan with a view to seeing if it is then operable. I've heard from someone else though that was told the same thing that they were then given 6 treatments in the end before surgery so I am going with that.

I joined this forum only a few days ago and I am finding it a massive help to hear all the positivity. I found the week straight after my last chemo, 22nd October so difficult but I'm so much better now. My mum told me to be patient with it and I'm going to try that next time. Anytime you want to chat you can always message me. It really helps talking to people who are going through the same thing.

organicinna profile image
organicinna in reply toHelvelyn

You should feel better when its settled.))

organicinna profile image
organicinna in reply toHelvelyn

To me after surgery was much much harder times then chemo of 6 round after / 2 moth i was suffering till its started to get better. Chemo wasn't bad at all or not that bad as i imagined. Now am thinking That Niraparib is harder on me than chemo )))

Helvelyn profile image
Helvelyn in reply toorganicinna

I’m sorry you are getting worse symptoms with Niraparib. What side effects are you having?

organicinna profile image
organicinna in reply toHelvelyn

Hello )) Not physical symptoms really apart from bearable coming and going aches in the late evenings, but mentally is not nice to me )) affected my sleep and whole well been and memory even worse that on chemo )) Feeling deepest more......But its only been 2 weeks/ They will call me today to talk how am i this week etc/ ))

Lovedogs41 profile image
Lovedogs41

I took clarityn 10mg every day and soaks in Epsom salt baths x

organicinna profile image
organicinna in reply toLovedogs41

what is CLARITYN please? never heard......

Lovedogs41 profile image
Lovedogs41 in reply toorganicinna

It’s an anti histamine or hay fever tablet. brand name Benadryl.Active ingredient is Loratadine 10mg

Helvelyn profile image
Helvelyn

Thank you. Did the pains go once chemotherapy stopped?

Jayniiee profile image
Jayniiee in reply toHelvelyn

I had these side effects with my first two cycles of chemo and they disappeared after a few days 😊 i would just check with your support team tho, if you are worried. They thought originally with the first cycle that i had an infection with the first (stomach pain was much worse then and I had a spike in temp).

Lyndy profile image
Lyndy

Can I suggest that you report these side effects to your team? They titrate chemo by body weight… perhaps they could slightly reduce the dose to help you avoid these problems for round 2? xx

Leniko profile image
Leniko

Always check w Onco. Magnesium can help but too much upsets stomach, causes runs.

Iside profile image
Iside

Hi there, I am on 2 magnesium powders daily cos after 3 years of treatment for OC I seem to have a low magnesium count often. The Onc is constantly watching it & I didnt realise it was soo important !!!! Have also had infusions !!! Ask for advice, good luck Iside X

Helvelyn profile image
Helvelyn

Thank you. The stomach pains have eased a bit now. Have ordered some magnesium xx

Heart12345 profile image
Heart12345

Hiya I sometimes found an electric heated blanket helped ease the muscle and joint pain and getting my head stuck into a good box set, distraction techniques. Also if constipated tinned prunes ( watch for any stones) and mango chunks. Some ladies on here suggested it could be the chemo bashing the cancer cells causing the odd abdominal pain but you could always chat to your nurse specialist about it. Staying hydrated is important. During chemo I found the first 10 ish days a bit pants but time from that to before next chemo good. Xx

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