Sudden onset ascities?: I have stage 4 high grade... - My Ovacome

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Sudden onset ascities?

Cumbrianlass5 profile image

I have stage 4 high grade inoperable OV cancer. Responded well to first line chemo and now on naraparib parp inhibitor. Have been feeling really well. However, since Wednesday evening I have been in a lot of pain in my stomach, back and at my waist. Could this be ascities? Can it come on so suddenly? Only spoke to my oncologist on Wednesday morning and not due another phone call from him for 2 months. I have only ever had a mobile number for my cancer nurse and now that says "calls to this number are not being connected". Tomorrow (Monday) should I phone my GP or try to contact the oncologist's secretary? And have any of you lovely ladies any suggestions to ease the pain? (It really is awful). Thanks x

31 Replies

I am sorry to hear that you are feeling unwell. My advice, having ignored symptoms I really should have got checked out, is not to delay. Ask the oncologist secretary for an urgent review or if necessary call 111. Parp inhibitors can cause bad side effects, it may not be the cancer but it’s best to take action! Best of luck xx

Cumbrianlass5 profile image
Cumbrianlass5 in reply to Lyndy

Thank you for replying. Have done 111 and waited 20 minutes to get through then spent ages answering questions but they got a nurse to ring me and she was very helpful. She is getting my GP to call me this morning x

Think you need professional advice on this , its not a good idea to ignore . Please get yourself checked out best to be safe than sorry. Hope you feel better soon. Take care love SheilaFxxx

Thank you for replying. Have done 111 and waited 20 minutes to get through then spent ages answering questions but they got a nurse to ring me and she was very helpful. She is getting my GP to call me this morning x

Good hope you get some answers today, dont let them fob you off. And l really hope your feeling a bit better today. Good luck sending love SheilaFxxx

Thank you x

Hi.. I would be persistent, its not right that if the nurse has changed her number not to let you know. Who cares if you only had call with your oncologist on Wednesday, they need to be available if these things happen and not ave to wait for another two months before speaking to them. They get paid a lot of money to look after people and when you need them they really need to support you regardless of just having spoken to you. Call anyone and anybody including your GP as you need to get to the bottom of your current discomfort. 🥰

Thank you for replying. Have done 111 and waited 20 minutes to get through then spent ages answering questions but they got a nurse to ring me and she was very helpful. She is getting my GP to call me this morning x

Realistic profile image
Realistic in reply to Annie2021

Totally agree with your comments its been a horrible 18 months for some of us. Hopefully things are slightly getting back too normal not sure if lm kidding myself really lve just got my 6 months checkup appointment in Feb22 blood tests one day next day telephone call which l think is a total waste of time. Xx

Nothing seems to be getting back to normal here. Have never met my oncologist in person yet. Emergency line just seems to deal with you if your symptoms are for sepsis and chemo unit only available week days x

Just scandalous what really goes on, time something was sorted. Xxx

Yes indeed. In Cumbria cancer services are far from good. Onc's secretary says he is not available today but will ring me tomorrow. Cancer nurse's number now says she is unavailable until 27th (which is today!) and to ring a switchboard number. Switchboard gave me another number which gives 3 engaged rings and then cuts me off. Thanks goodness my GP said somebody would see me at lunchtime x

I know lve been down that road so many times. Good luck today that you get some answers. SheilaFxxx

GP saw me. Very reassuring. Full examination and went in detail through this month's scan. Said my bowels had become backed up and told me what medications to buy. Just as well as left message asking for cancer nurse to call me but she hasn't (again). Supposed to hear from oncologist tomorrow. Will wait and see but much more comfortable now that laxatives working (possibly too well but can cope with that). Thanks you so much for replying. Best wishes x

Thats great news, and the problem with the bowels is what l have , but my doctor gives me a prescription for laxatives to help it does seem a problem that a lot of as haveon this forum. Glad you feel a bit better informed today. It helps too get a proper

explanation doesnt it. Hope your feeling yourself soon. Sending love SheilaFxxx

Many thanks. Yes feeling much better. Take care. Love back to you x

Yes fight on to be cured from this horrible foreigner in your body.. 🥰

Will do but not easy in Cumbria where cancer services are far from good. Onc not available today but will ring me tomorrow. Cancer nurse's number now says she is unavailable until 27th (which is today!) and to ring a switchboard number. Switchboard gave me another number which gives 3 engaged rings and then cuts me off. Thanks goodness my GP said somebody would see me at lunchtime x

Great that you will get seen to.. 👍👍

Yes indeed. GP saw me. Very reassuring. Full examination and went in detail through this month's scan. Said my bowels had become backed up and told me what medications to buy. Just as well as left message asking for cancer nurse to call me but she hasn't (again). Supposed to hear from oncologist tomorrow. Will wait and see but much more comfortable now that laxatives working (possibly too well but can cope with that). Thanks you so much for replying. Best wishes x

Im glad you got sine reassurance and medication is working 😊

thank you x

So pleased you’ve seen someone and feeling more comfortable 👍🤗

Thank you. Still far from right but now just uncomfortable rather than in pain x

Hi I’m sorry your going through such pain, I would contact consultant’s secretary and explain you couldn’t get through to specialist nurse ask her if numbers have changed and has she new contact details. Also tell her how much pain your in and when it started and ask for emergency review and chat with oncologist.You could always take yourself to a and e sometimes gp can do urgent referrals for ct scan. Always tell any drs you talk to drugs your on. Good luck let us know how you get on,Mish x

Will do but not easy in Cumbria where cancer services are far from good. Onc's secretary says he is not available today but will ring me tomorrow. Cancer nurse's number now says she is unavailable until 27th (which is today!) and to ring a switchboard number. Switchboard gave me another number which gives 3 engaged rings and then cuts me off. Thanks goodness my GP said somebody would see me at lunchtime x

Crumbs that must be frustrating, glad gp has organised someone to see you. And hopefully consultant will get something sorted for you soon. Xx

If you can't be connected to your nurse by her mobile number, if you need help again, would the hospital switchboard put you through or give you an updated number? in the meantime, I hope you quickly get sorted now

Cumbrianlass5 profile image
Cumbrianlass5 in reply to Di16

Switchboard put me on to a number which said I had to phone another number. It was engaged all morning. Eventually left message in her department and they promised she would ring. Heard nothing yet (6-30pm) !! Thanks for replying x

Hi do you not have a treatment card with 24 hour number for cancer nurses I’m in liverpoolwe have a clatterbridge centre .I have stage 4 inoperable did great on chemo now on niraparib for last 5 days 200mg doing well up to now really hope you get sorted and cancer services in your area improve xx

I have a card with a number to ring if I get any of the signs of sepsis. Otherwise there is just a mobile number for my cancer nurse who does not work weekends and on week days is often working in gynae clinic and unavailable. However, she did ring me back late last night. (I had left a message that morning). Spoke to my oncologist's secretary yesterday morning too but he was not available and is supposed to be ringing me today. Thank goodness my GP saw me and said it was not the cancer causing the pain but that my bowel was backed up. He told me what laxatives to buy and they have eased things a bit. Thank you for replying. Best wishes to you x

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