Feet

[polo2014]

Morning guys. Hope all ok

My feet are feeling very strange after my 3rd chemo feel stupid saying this but feel like I have engines in them (sounds soft doesn’t it x

[NotThatGirl]

Hi Polo,

It sounds like it could be some minor neuropathy. You should mention it to your oncologist next time you see them, just so they can keep tabs on it, but it's pretty common to experience some neuropathy during chemo (particularly paclitaxel, but it can also occur with carboplatin).

[polo2014 in reply to NotThatGirl]

I’m on carboplatin thanx il mention it when I see her x

[Mammi]

Hi , yes I can relate to that. At the start of my first carbo/taxol I felt like I was connected to the national grid 😳was terrible but I put up with it as I thought that was everyones experience plus I didn’t want the chemo to be cancelled as I felt a complete course would be my best security to beating it! Luckily it settled down for the remaining infusions & was doable so glad I stuck with it 🤗 I found keeping a diary of symptoms helped.Hope it settles down for you too .Hugs Dee X

[polo2014]

Thanx x

[Cropcrop]

It’s likely peripheral neuropathy which is really quite common and a result of the chemo. Your analogy of engines is a really good one. Let your oncologist know and they’ll monitor it for you but it’s nothing to worry about in the whole scheme of things. Take care, we’ll done on having your chemo, good luck with the rest of the infusions you got this lovely, ❤️xx Jane

[Bluetilly]

I had very odd sensations in my feet after third session of chemo ... felt as if I was walking on jellybags! I also couldn't always tell where my feet were, if I wasn't actually looking at them! They did improve after chemo finished and are still gradually getting back to normal. So I'm pretty sure your "engines" will eventually settle down. Worth mentioning it to your consultant, though, but try not to let it get you down too much ... difficult I know with everything else chemo throws at us. Hold on in there ... there's blue sky ahead x

[Irisisme]

Yes, Polo, as has been said, sounds like neuropathy. It is very hard to describe- I say that it’s like having pebbles in my shoes, or having my feet frozen, chilblains, pubs and needle, or a combination of all of the above.

It could be something else but most likely to be neuropathy.

It’s really a question of whether you can put up with it or whether you need to stop the treatments. You should tell your chemo team though.

Mine is minor so I put up with it but you will have to decide for yourself.

Good Luck 🍀

And hugs 🤗 🤗

Iris

[KayDale]

Please let your oncologist know and keep a good eye on it. After 7 treatments of taxol and carboplatin I had to stop due to my neuropathy. I should have stopped earlier as the neuropathy is pretty debilitating to me. I' ve been put on gabapentin to get some relief but am angry with myself for not stopping sooner. Good luck!

[Tulips66]

Hi polo2014, yes I remember my feet felt like I was walking on very small pebbles & I developed an angry bunion which I didn't have before but all this went after I finished chemo. I am back on chemo since March & so far I haven't experienced the same but not on taxol this time. Hopefully it will ease up for you. All the best with the rest of your chemo, hope that's the only side effect you will have Xx

[Mumsie13]

Hi. My feet feel as though I have screwed up paper in my shoes and I sometimes stumble because I am not sure where I have put my feet especially on stairs and stepping of curbs. My right hand is affected too - the right side feels numb. It's difficult to bend last two digits and sometimes I get a "trigger" finger. What they don't tell you is that you can get pain with neuropathy; I get shooting pains along side of my hand and into my wrist. I am right handed and so clumsy now. I find it hard to manipulate things. In the winter my feet sometimes feel so cold they ache. I didn't say anything for a while because I thought it would go and didn't want to stop treatment but it was getting worse and by the fourth session I was worried enough to mention it. I really should have mentioned it sooner but I didn't want to stop treatment. Oncologist reduced the Paclitaxol for fifth session and completely stopped it for the sixth. She said I had a 50/50 chance that it would go but it never did. That was four years ago. The good news is it doesn't seem to have got any worse. It was playing up a bit when I had carboplatin last year but it settled down once chemo stopped. It would probably be a good idea to mention this to your oncologist she may be able to adjust your dosage if that would be helpful for you. Meanwhile I hope your lucky and it settles down. Jackie

[Pianoplayer731021]

Hi polo, I have neuropathy in my feet from taxol and carboplatin treatment. I am on niraparib now and still have it. It might never go away. Just have to watch this if it gets so bad that I can’t feel the floor, then things have to be adjusted. These treatments come with side effects and aren’t so pleasant. Hang in there and know that your teal sisters are on here to listen. Good luck, Donna

[Mommoo65]

It does sound like neuropathy. I had tingling in my fingers after the second chemo treatment and then buzzing and tingling in my feet after the 4th. Six years later I still have it but have learned to live with it. I wear padded socks around the house as the bottom of my feet are very sensitive.

[Bluebaby1]

Yes, as said before, I too have neuropathy in my feet but luckily ,so far, not in my hands. I have completed 3rd line weekly Taxol for 12 weeks and now on 3 weekly Carboplatin. It has worsened a little but my Oncologist has reduced the dose. Feels like I am walking on sand bags and occasionally get shooting tingles in my feet.But, I don’t want to stop treatment, so I soldier on.

Hope yours doesn’t worsen and best of luck with your treatment plan. ❤️🦋