Feeling blessed

[March2017]

4 years on from diagnosis, CA125 Steady at 10. No recurrence as yet! Don’t post much but do read posts at least twice a week. Don’t recognise many from when I first joined, if you remember me from here or met me at any functions how are you all? When initially diagnosed never imagined I’d get this far! So grateful and looking forward to my first grandson in July. It’s more than I could have ever hoped for 😀

[Tulips66]

Hi I only joined this group Jan 2019 so we never chatted before but I just wanted to say that it's great you are 4 yrs on & no recurrences. I finished my chemo July 2019 & only finished the maintenance treatment Avastin early Sept 2020 & unfortunately haven't been as lucky as you as 2 weeks after a Ct scan showed recurrence in my groin so had op on the 2nd Dec & starting chemo again exactly 2 yrs since starting the first chemo ☹️ but it is still good to hear of other ladies on here doing so well & gives me hope that like you I will get to see my two daughters marry & maybe one day be around to be a granny too 🤗Wishing you many more years of been healthy & no recurrences 🌸

[Realistic in reply to Tulips66]

Bless keep strong we are all in this together sending my love & prayers please keep positive SheilaF xxx

[March2017 in reply to Tulips66]

Thankyou , I’m sorry to hear you had a recurrence so soon, take a look at Betty’s post a little further down, it will really give you hope for the future, big hugs 🤗

[Mammi]

So lovely to hear good news as I’m about to have my 3rd 3month consultation & feeling very anxious. Don’t think those feelings ever really leave you do they, suppose we just have to learn to live with the unknown but what a bonus...a new grandson!! how lucky you are !Hopefully by the time he’s born you will be allowed cuddles 🤗I have four grandchildren & waving from a distance is really sad so we will look forward to a very special summer ☀️Dee x

[March2017 in reply to Mammi]

Thankyou, glad your doing so well, I too am still on 3 month check ups and yes the anxiety is still around , but we learn to live with it don’t we. I do hope it’s not long before you can hug your grandchildren again, best wishes to you 💕

[Realistic]

You know thats brilliant, and my ca 125 is 10 at the moment l didn't actually find this site till last year but find the stories and the hope so inspiring woman gives me hope that there's always something to keep us going . What treatment if you dont mind me asking have you actually had so far. Keep strong and keep well.

Sending hugs think we all need them at that moment. SheilaF xx

[March2017 in reply to Realistic]

Thankyou 😊 it’s lovely to hear your also doing well. I had the usual surgery, hysterectomy, appendix , omentum and lymph node removal, carbo/taxol and Avastin along side and after chemo for 18 months. 🤗

[Hidden]

Hi I remember you!

There aren’t many names I recognise now either.

I’m so pleased to hear you have stayed well.

I was diagnosed in 2016 and I will be clear 5 years in May. I’m hoping that this will allow me to have checkups annually.

I hope both of us can give hope to lots of others xx

[March2017 in reply to Hidden]

Thankyou, well done you !that’s amazing 😊

[Realistic in reply to Hidden]

Amazing its what l want to hear, Keep well stay strong, were all fighting this together hugs to all out there. Xx

[RainbowC]

What a message of hope! I’ve only been here a few weeks, although I was diagnosed in November 2019. Fingers crossed for you, me, and everyone else hoping that recurrence is way off in the distance...

[Bettyxxx]

Hi there

Great to hear you are doing fabulously, i love to hear good stories too and long may it last! I think we duck on and off this site (well i do anyway) and participate when i feel i can xx.

I am 7 year survivor with one recurrence and that was 3 years ago. 2 kids both married and 3 grandchildren later loving life and like you at the beginning could not imagine getting to here, it certainly is a lottery xx a grandson oh my how special, people say being a grandma, well nanny in my case is amazing and it truly is i love every day, send a pic to the group when he arrives

Here are 2 of my 3 xx

Much love

Diane

Christmas

[Realistic in reply to Bettyxxx]

What a beautiful photo of your gorgeous grandchildren 7 yrs fantastic so glad l looked at the posts this morning fills me with so much hope. Love SheilaFxxx

[March2017 in reply to Bettyxxx]

7 years ! that’s wonderful, so nice to hear of others doing so well also, it’s just the boost everyone needs and what a gorgeous photo, absolutely adorable. I will definitely post a pic on his arrival , I’m so excited 😆 sending love and hugs 🤗

[Tulips66 in reply to Bettyxxx]

Betty it's great to read your story, it gives me so much hope as I start my chemo for my first recurrence. I wish you many more years of been healthy & spending time with your beautiful grandchildren 🌸

[Katiebairdie]

Hello,

It’s nice to hear happy stories and you are very blessed.

I’ve been on this site for over six years and still feeling good. However not as lucky as you as I’ve had six recurrences. My team have looked after me brilliantly.

Also I have found this site has been a great source of information.

Look forward to hearing more good news in July.

Kathy

[Dollie22]

That is absolutely brilliant. well done and i wish you continued good health . Unfortunately i’ve had 2 recurrences. May i ask if you are brca positive? I’m brca negative .

kind regards , D

[March2017 in reply to Dollie22]

Thankyou Dollie, I’m BRCA2 x

[Irisisme]

Lovely to hear of one of our number doing so well. Thank you for posting March2017, may your good fortune continue forever ❤️

It’s not all doom and gloom here! 🤗❤️🤗

[Katmal-UK]

Brilliant post! Congratulations!

[March2017 in reply to Katmal-UK]

Thankyou, you too! Your doing amazing, I’ve been inspired by your posts from day 1 , you give us all hope 🤗

[Petrolhead]

Hi

I still look at posts but do not post often. I admire Katmal for still being so active and inspirational for the newer members.

I suppose that many ladies post for a while then try and get on with their lives if they are able. It will always be an evolving group I think. As mine was a rarer type I only feel I can help in a limited way with experiences.

I am now 4 years post chemo. YAY! 😁

I still like to read the forums. All posts are welcome I feel and newer members particularly enjoy hearing from long term members.

Fay

[March2017 in reply to Petrolhead]

Totally agree, well done you 😊

[January-2016-UK]

Hello, I think we met in Brighton one year at an ovarian cancer conference. Your news is fantastic. I have not been so lucky but nevertheless. I think I'm very lucky to still be here. I have had so many treatments and trials these past five years and had a very good summer with few side-effects. Pity the winter's lockdown has meant I've been unable to make much use of feeling so well, and I'm not quite so well now, but who knows? If I can, I'd like to visit my sister in Australia next year and a few other shorter holidays, fingers crossed.

I still look on the forum about once a week or so but don't post very often unless it's something I think I can contribute to.

[March2017 in reply to January-2016-UK]

Yes I remember you! Seems so long ago now . I’m sorry to hear you’ve not been too good lately but you’ve come so far, when you get to OZ post some pics! Sending love and hugs 🤗

[Mommoo65]

Hi March2017! Wonderful news on your 4 years. It sounds like you're doing very well! And congratulations on the upcoming birth of your grandson. I have 3 daughters and 2 grandsons and its been a treat seeing the differences emerge as they grow.

I was diagnosed in 2015 and after 5 years my CA125 went from 10 to 85. Yup. I had a recurrence in an inguinal node. I had surgery to remove it and 25 rounds of radiation. It was a challenge as the pandemic was starting and I had taken over my grandsons e-learning supervision. Last CA125 in January was 6. Next one is in April. Just making sure the critters have left the building! Keep in touch! This is a great place to share any concerns with ladies who have been thru it all!

[ovarian1c]

Bless you Darling❤️

[Harleeboo]

So lovely to hear ,I used this site back in 2017 whilst following my daughters struggle ,she is also 4 years on and long may it last ! Keep strong everyone 🥰

[Madmolly]

What a wonderful result. I to had stage 4 just finished 15 month trials. Have been ver sore from avastin, hips, knee and right ankle. Hoping that when I stop eventually pain will go but afraid of recurrence

[Jane420]

That’s fabulous. ❤️😍

[Elsp1925]

Hi, lovely to read such good news. Are you on a parp inhibitor? I’m currently in Rucaparib and my CA125 is currently 1377. Wishing you continued health and enjoy being a grandmother.