Feeling Good.: I was diagnosed with stage 4a... - My Ovacome

My Ovacome

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Feeling Good.

LPorter profile image
49 Replies

I was diagnosed with stage 4a fallopian tube/ovarian cancer in June 2016. Treatment finished at end of Nov and at this point in time I am NED. Today I played my first tennis match something I never imagined I would do again . I think I will be sore tomorrow but it is great to get some normality back! When I was first diagnosed I asked my consultant if it was worth treating, he answered emphatically yes, I am glad I listened. PS I won!

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LPorter profile image
LPorter
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49 Replies
GBIRVMIC profile image
GBIRVMIC

Wonderful to read this and playing tennis!! Superb news!!

LPorter profile image
LPorter in reply toGBIRVMIC

Thank you, I just think it is good to share the positive stuff too.

Caroles1 profile image
Caroles1

It's so lovely to hear! Make the most of every moment, I am in admiration of you so soon after treatment, long may it continue,

Carole xxx

LPorter profile image
LPorter in reply toCaroles1

It hope it does too!

LPorter profile image
LPorter in reply toLPorter

Thank you! I didn't want to sound smug but I do think it is good to share the positives. I am well aware that it could all change in a moment.

Microbabe profile image
Microbabe

What a lovely uplifting post ... well done 🎉

dmr24 profile image
dmr24

Great news onward into 2017. I also finished treatment in November and now NED and I have returned to my fitness classes (circuits etc) I feel a bit stiff the following day but it gets better and I go back!

Long may it continue.

D

LPorter profile image
LPorter in reply todmr24

It is just great to feel yourself returning to good health.

Katmal-UK profile image
Katmal-UK

What a brilliant positive post! well done for the tennis win as well!

LPorter profile image
LPorter in reply toKatmal-UK

Thank you! I probably won't be able to move tomorrow.

January-2016-UK profile image
January-2016-UK

Well done! Both for winning and of course for trying! All the best.

LPorter profile image
LPorter in reply toJanuary-2016-UK

Thank you!

ricky23 profile image
ricky23

Wonderful to read this. Well done xxx

Well done but also make sure you have plenty of rest and take it nice and easy all the best

LPorter profile image
LPorter in reply to

Oh plenty of that too!

85live4ev profile image
85live4ev

Hi there, thank you for a great positive story. We all need hope & this gives hope!! Take care Cindyxx

LPorter profile image
LPorter in reply to85live4ev

I am glad, thank you!

RosaMendez profile image
RosaMendez

Wow I am so happy to read this . I was diagnosed in march 2016 with fallopian/ ovarian cancer stage 3c. I had chemo and surgery but i am still in some pain and swelling and I worry alot . This gives me hope to continue to fight this .

LPorter profile image
LPorter in reply toRosaMendez

Ah the worrying, I do plenty of that too believe me! On bad days I think I am not going to waken in the morning. That is why I though it was good to share when things were going well! I am in a good situation ATM and plan to make the most of it fully aware that everything could change.

GoldenGourd profile image
GoldenGourd

Hey LPorter great to hear this! The surgeon told me my cancer was fallopian after histology on what was removed during surgery ( originally said it was oc after first biopsy) and also stage 4. I'm glad you had the ooomph to play and even gladder you won - an analogy of sorts! Keep on keeping on.

Netti

LPorter profile image
LPorter in reply toGoldenGourd

Same as me, told at first Oc and then changed to FT but makes no difference re treatment. I am not sure if it makes any difference re outcome. I am relieved to have done so well thus far and am enjoying going back to my old activities. Thanks for your reply.

Lyndy profile image
Lyndy

Yay! Good for you!

LPorter profile image
LPorter in reply toLyndy

Thank you!

Maryblackcat profile image
Maryblackcat

So happy for you! You go girl! I too am stage 4 and so far have only had a chemo. Have a scan 1st of Feb to see if they can operate or not (it was also in my liver when scan last done). Do you mind me asking if you had surgery and chemo. So wonderful that you are NED and getting back to normality. I used to run and am hoping to be able to do this soon. My last chemo is this week. Thanks for sharing your story as it really helps, especially with stage 3 and 4 as there's so much doom and gloom out there at times and I keep reminding myself that anything can and does happen, including the being NED and the cancer never coming back. Keep going and stay active as you are!

LPorter profile image
LPorter in reply toMaryblackcat

Hi there, I had 4. rounds of Carbo/Taxol then surgery then 2 more rounds of chemo. I was scanned after 3 rounds and no disease was visible. Only microscopic disease removed during surgery as chemo had done the job and there was nothing larger. At diagnosis I didn't have any cancer in other organs but did have lymph node involvement and a malignant pleural effusion which pushed me to 4a, originally stage 3. My medics have been very encouraged by how well I have done to date and have told me that they just cannot predict how people respond. Often patients who present with advanced disease do much better than those with a lesser diagnosis. So anything is possible keep faith. It is early days for me and the next year will be telling but so far so good. My oncologist laughed at me when I complained that I was out of breath when I was walking in hills with camera gear 5 weeks after finishing chemo. You'll be back running in no time! Good luck.!

Luchie profile image
Luchie in reply toLPorter

Hi, I was diagnosed with ovarian cancer which metastasised in my peritoneum wall last September 2016. They started me with Carboplatin and taxol chemotherapy. I had 4 sessions already and had total hysterectomy and omentectomy last Dec.21. I went to see my consultant oncologist who told me the result of the histopathologist report on the bits they have taken out from my op. He told me I'm stage3c and its aggressive form. So once my wound is healed I will resume my chemo and that will be in 2 weeks time and I will have avastin as well for 18 cycles. It's so nice to hear from people who has the same problem as it doesn't make you so alone. I must admit before my op, I was very well and even forgot I have cancer as the chemo was a doddle. I did not have a lot of side effects like nausea and vomitting. My op was far worst than the chemo.

Good luck and lots of Huggs xx

Luchie

LPorter profile image
LPorter in reply toLuchie

You will be finished treatment in no time and will be surprised how quickly you will recover from surgery. Good luck! you are not alone.

Heatherslade profile image
Heatherslade

So good to hear. Nice to get back to normal. I was diagnosed stage 3 after op for bowel cancer last June. Finished chemo last week, back playing golf etc. CEAcount down to 9 and a ct scan at Christies 3 weeks. Bowel area looking good according to surgeon so heres to a good 2017 with positive news for everyone. So much is happing in research which is promising and give you hope. KEER POSITIVE everyone

LPorter profile image
LPorter in reply toHeatherslade

Great news for you. It is so wonderful to be able to do the things we enjoy. Hope that 2017 is a good year for you.

Maryblackcat profile image
Maryblackcat

Thanks for your reply, LPorter. Great to hear all that. Yes, keeping the faith and hoping others can and we hear many other good news stories as 2017 unfolds! x

greenpink profile image
greenpink

Congratulations! I was diagnosed with stage 4 in May 2012. I had treatment that year. I had a recurrence 2 years and 7 months later and had successful treatment for that in 2015. You may never get a recurrence. I am currently well. Exercise is anti- inflammatory so is very good for the body, as is good food rest and joy. Enjoy!!

LPorter profile image
LPorter in reply togreenpink

Thank you for your reply and such a positive one! It is so encouraging for me to hear this.

Luchie profile image
Luchie in reply togreenpink

What a lovely positive attitude and outcome. So nice to hear you are doing so well. It shows that if you are diagnosed with stage 4 it's the end! You are an inspiration to us all.. Xx

LPorter profile image
LPorter in reply toLuchie

I hope you mean not the end!! Ha ha Thank you

Luchie profile image
Luchie in reply toLPorter

A, so sorry, what I meant was its not the end!! Huggs..xxxx

LPorter profile image
LPorter in reply toLPorter

I know! Thought it was funny!

Biscuitqueen profile image
Biscuitqueen

This is such uplifting news; thank you for sharing :)

LPorter profile image
LPorter in reply toBiscuitqueen

Pleasure!

Mommoo65 profile image
Mommoo65

Great news! I am FT 3b after initial diagnosis of PPC. Cat scan pre surgery did not pick up tumor in Fallopian tube. That was Sept 2015 and so far so good! I am back in my bike for exercise and feel great. Good luck to you and so glad you are doing so well.

LPorter profile image
LPorter in reply toMommoo65

Thank you! Every good news story gives me hope.

Brilliant news! Your consultant gave you great advice.

For me exercise really works to boost my morale.

Here's to many more tennis matches.

Dawn xx

LPorter profile image
LPorter in reply to

Me too, every bit as important for the mind!

Barbara123 profile image
Barbara123

Fab news for you, thanks for posting we all need to here the positive stuff, long may NED reign!!! Bxxx

LPorter profile image
LPorter in reply toBarbara123

Thank you Barbara!

LindaB profile image
LindaB

Good for you and such a positive post x

Well done look out Tim Henmen

LPorter profile image
LPorter in reply to

I wish!!!

Heatherslade profile image
Heatherslade

So great to here positive news. Think its important to be as fit as you can. I continued withmy golf through treatment, not always full 18 holes but 2 weeks after finishing chemo I played full course this week and won! So great to start feeling some normality as you mentioned. Still waiting for A CT scan date but hope will have a good result as you did. Yes you are a winner and keep that in mind.

LPorter profile image
LPorter

Thank you Heather! It is lovely to hear that you are doing well to. For me physical exercise is as much about the mental as well as physical.

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