Squamous cell : Hi everyone, I have been... - My Ovacome

My Ovacome

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Squamous cell

AislingL50 profile image
9 Replies

Hi everyone,

I have been diagnosed today with squamous cell carcinoma. The oncologist has said is is quite rare and was enclosed in a dermoid / terratoma which I had removed along with both ovaries and tubes 5 weeks ago. Because it was removed intact the prognosis is very good. They think they got it all with surgery and have booked me for a ct scan . If that’s clear they will do no further treatment and monitor it closely over the next 5 years.

Just wondering if any one on here has had similar .

Hugs xx

Aisling

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AislingL50 profile image
AislingL50
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9 Replies
Tulips66 profile image
Tulips66

Hi Aisling , I have never heard of it & I know your not supposed to google but I did😛 & the survival rate is very high so it looks like the news you got today is great news so hopefully the CT scan will confirm that. I am having an ultrasound & biopsy next week & will get the results the week after, so hope I will get good news too. I am really worried that the cancer is back again 😞but 🤞it's not. Let me know how your CT goes & all the best 🌸

AislingL50 profile image
AislingL50 in reply to Tulips66

Hi there . I know it’s great news but I can’t stop the tears today . I got a shock when I heard those words. But I know I was lucky for it to be caught at an early stage

Wishing you all the best and positivity for your procedure and results

Hugs xxx

Nus38 profile image
Nus38

Hello Aisling

Sorry to hear about your diagnosis. I am glad to hear that prognosis is good for your type of carcinoma. Wishing you well with CT scan.

Nus x

AislingL50 profile image
AislingL50 in reply to Nus38

Thanks a mil . Really appreciate the support xx

lesleysage profile image
lesleysage

Hello Aisling, just out of interest I checked the Ovacome information leaflets and it appears not to be there! Anyway, by the sounds of this, your team has done the best job possible, so that is all that matters.

Keep taking care, staying safe, wwell and sane! And having fun too. L x

AislingL50 profile image
AislingL50 in reply to lesleysage

Hi Lesley . My oncologist said it is a very rare form of ovarian cancer where a dermoid terratoma turns malignant . I know I am very lucky that the prognosis is good but I feel like I have been hit by a bus with shock and am very tearful today . I think it’s just the fact of hearing those words .

Hugs x

lesleysage profile image
lesleysage

Hi Aisling,

I am sure all of us on this site relate to being hit by a bus...my metphor was being hit by a high-speed train and the shock took months to settle and for me to be able to relate to my body, which was previously healthy and in decent order (not perfect but doing ok for a 65 year old at diagnosis)!

I found myself writing a 'journal', not a diary but just when I felt 'in a place' where I noticed how my shock, fear, anger, relief I was still alive etc. was taking over my pre-cancer love of family, friends, life, work and voluntary work.

Whatever your prognosis and it sounds hopeful, please allow yourself lots of kindness to yourself and those you love and want to keep in your life.

All of us here on this forum and the Ovacome team, should you wish for more professional support, are here.

Warmest wishes, L x

AislingL50 profile image
AislingL50 in reply to lesleysage

Hi Lesley .

Thanks a mil. I supose I feel guilty for crying and being so upset because I know there are a lot of women on here with much a worse diagnosis and I’m one of the lucky ones but I still like it’s all out of my control if that makes sense. Any way surgical menopause probably not helping with my emotions being all over the place .

Onwards and upwards.

Aisling xx

AlaNtO profile image
AlaNtO

Squamous Cell carcinoma is usually a skin cancer that is burned off with liquid nitrogen. It can get serious if left untreated. I am not aware that it metastisises like others do. Hang in there and let the Oncologist do the worrying.

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