Good evening lovely ladies ( and gents). I hope that things are going as well as possible for you.
I'm afraid that circumstances have meant that I am not going to be eligible for the trial at Oxford. I was admitted into hospital a week ago in a lot of pain. They thought I had a bowel obstruction and put me on iv fluids and nil by mouth. After another CT scan they realised that one of my pelvic masses has grown to 10cm and is pressing against my rectum on one side and my bladder on the other. Needless to say the last 16 weeks of paclitaxel have not worked. I just hope that the radiotherapy shrinks the tumour a bit and helps things move along.
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Welshandproud
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Oh Sian, sorry to hear this. Hoping they can zap the tumour and make you feel more comfortable. You must be exhausted with the difficult time you've been having this year.
Sending a gentle hug.
Nicola x
Sending you strength and love x Get ready to zap that thing!!! Berni x
Sorry to hear this Sian. I do know that radiotherapy can be really successful-my husband had a 10cm tumour in the esophagus and the radiotherapy zapped it completely, it’s a tiring regime, but I’m keeping everything crossed for you.
This must be so disappointing for you. I hope the radiotherapy zaps the tumour and that you will soon be pain free again. Best of luck. Keeping everything crossed 🤞and sending lots of positive thoughts and hugs. Jackie x
I’m gutted for you, it feels like you just navigate one hurdle then bam 💥 there’s another one to face.
Radiotherapy helped my brother after he had throat cancer, I’m sure you will come through the other side, it’s knocked your trial back and your confidence but maybe going forward when it’s done it’s job you could try to join the trial again.
One step at a time, it’s hard, I know.
You are stronger than you know .... you can do it !
This is really distressing news. I’m So sorry Welshandproud. Thank God (or the NHS) have an answer for you. I hope everything starts working for you pretty soon.
Caelyx reduces my 12 cm tumour to 5cm earlier this year. Rucaparib didn’t work.
I’m starting Taxol tomorrow for 18 weeks so hopefully it will work for me and the other ladies going down the same path.
Lots and lots of love and care. You can do it. You’re Welsh and proud.
I’m so disappointed to hear this Sian, at least you gave the taxol a try. I hope the radiotherapy has a desired effect to help move things along and make you less uncomfortable. As always, you will continue to be in my thoughts and prayers. Love and big virtual hugs lovely lady ❤️Xx Jane
Sorry to hear your disappointing news Sian, thoughts and prayers that the radiotherapy will work , Taxol didn’t work for me second time around but my oncologist came up with one I’ve not heard of on this site, vinorelbine and Avastin, at the moment it seems to be keeping me stable until a trial comes up at the Marsden 🙏🏻
So sorry to hear this Siam . I wish you all the luck with radiotherapy,
Take care
Caleda x
Hello Sian - I am sure that came as devastating news regarding the trial, however once they have the tumour under control can you re-apply for the trial?
That's disappointing news, Sian. Keeping my fingers crossed though that your innards will calm down again and hope you are getting something to help with the discomfort.
Hi Sian, I'm really sorry for all your going through it sounds awful. I'm sure the Radiotherapy will do the trick. Wishing you all the very best and sending big hugs. Sue xx
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Keeping my fingers crossed though that your innards will calm down again and hope you are getting something to help with the discomfort. 
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