Many of us on this site have found talking to Ovacome's Support Services either on their freephone 0800 008 7054 or by other ways as offered on their website (ovacome.org.uk/support-line) has helped when we are in a deep hole with no idea of how to climb out.
I'm sorry to hear you're in pain and feeling unwell. We're here to support you, so please get in touch with our Support Team on 07503 682 311 or 0800 008 7054 or email support@ovacome.org.uk if it would help to talk anything through or if you would like any information.
Your Clinical Nurse Specialist, or other point of contact in your hospital team, will be able to advise you on what may be causing your symptoms and how they may be managed. If you feel that it would be helpful to talk through your situation and options further with them, you can also ask to discuss them.
Carers UK (carersuk.org/) offer help and advice to carers, and you can contact their Helpline on 0808 808 7777 Monday-Friday 9am-6pm or email advice@carersuk.org.
The National Autistic Society (autism.org.uk/) provides support, guidance and advice, and you can call their Helpline on 0808 800 4104 Monday-Friday 10am-3pm or contact them online at autism.org.uk/what-we-do/co.... They also have a Parent to Parent Emotional Support Helpline, which you can call on 0808 800 4106 and leave a message to speak to a trained parent volunteer.
If your husband has chronic kidney disease, it may be helpful for you to contact Kidney Care UK (kidneycareuk.org/get-support/) on 01420 541424 Monday-Friday 9am-5pm. If he has a different health condition and it would help for us to explore sources of support, please let us know.
I hope that you can get some further advice from your team and access any support that you need. Please let us know if there is anything that we can help with.
Hi country chick, do you have a close neighbour who could help you out even if it's just to take your son for a couple of hours because you really need to get yourself checked out. You sound like your really struggling at the moment both mentally & physically. I understand you probably feel isolated due to the pandemic so maybe ask your gp if they can help you in some way or your cancer liaison nurse . I hope you get some help soon as it's hard enough trying to cope with a cancer diagnosis without all the other stress. Don't be afraid to reach out to people I am sure they will gladly help you if you ask. Take care & I hope you will be feeling better soon 🌸 X Mag
It's no wonder you dont know where to start. Sometimes I just have to let my husband take over for me and you aren't in a position to just be able to have some one take over for you. There is a lot of good advice re Ovacome, CSN and GP-please reach out to them, all of them if you need to.
I am a social worker - there is something we do called Family Group Conferances where we support family and friends to pull togther a support plan around a child. Your son has ASD and so as a child with a disability is automatically a child in need, additionallly he may also be considered a young carer. It might be that you can access support throough Children's Services in terms of them helping with a FGC etc - his school (even if he not attending) should be able to help with that if it is something you think could help. Take care and thinking of you xxx
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