It's back!

[27-359]

Hi all. I am now experiencing that thing we all dread, and I feel so alone, so am reaching out to the Ovacome sisterhood. I found out today that the suspicions I had were right, and my CA25 has gone up to 92 from14 in December. I just felt that something wasn't right and my GP rang me this evenings with the results. I am going to contact my old CNS tomorrow and start the ball rolling. Obviously, it is not a good time to be starting cancer treatment, so I wonder if they will delay for a few months, as I am generally well. I just want to be able to see my family and have some hugs, being shut indoors with no contact with anyone, and now this crappy news, I am feeling so low.

Sorry for the pity party, I just wanted to share with people who would understand.

Jenny

[Hidden]

HI Jenny, sorry you have a recurrence. It is just your gp you have seen so far? Have you had a CT Scan. Try not to pre empt the results. Have family time while you are waiting for referral etc.. I agree this isn't the best time to get sick. Hopefully all will be better than you think. For now take it day by day week by week/

[27-359 in reply to Hidden]

Good morning.

Yes, I have only seen my GP. I had an inkling that something wasn't right, and as my check up wasn't until June, I asked for a blood test.

Presumably a scan will be the next move.

Jenny

[Sw21]

Hi Jenny,

I truly hope you don’t have a delay if you need to start up again. And if it is a recurrence, I hope it’s tiny and gets zapped back to neverland with chemo.

Sending a virtual hug and courage,

Stephanie🌸

[27-359 in reply to Sw21]

Thank you for your reply. I shall be needing this forum a lot in these difficult times.

Jenny

[Flamingobeef18]

Hi Jenny

So sorry to hear that your numbers have gone up.

I know it is easier said than done but as Suzuki says try not to preempt things. Give your self time to process what has happened but then breathe. You will need to at least see your Oncologist and have a Scan before treatment could begin even if you need it which of course is not certain yet.

In my experience there has never been a rush to get treatment restarted and if you are relatively symptom free this is more likely to be so. Your Oncologist will be able to advise you when would be the optimal time to begin any treatment.

You are right that timing is a bit of a bugger given our current situation for you and me both. ( I have just started chemo again.) However I think continuation of our treatment is going to be very very high up the list of the hospitals priorities. I imagine the poor people with less ‘serious’ conditions waiting for routine procedures are going to be less well off.

Sending you lots of good wishes

Juliax

[27-359 in reply to Flamingobeef18]

Thanks Julia.

I must admit, I would like to enjoy a bit of the summer, so delaying treatment wouldn't bother me too much.

You are right, I shouldn't look too far ahead. It's just that getting the news last night, and not being able to see anyone for a hug and a bit of tlc, threw me into a dark place!

We can do this, we have no bloody alternative!

I hope your treatment is going well. You are one of the stalwarts of this forum, and I have followed your posts for a while now.

Jenny

[Flamingobeef18 in reply to 27-359]

We all need a wobble every so often and thank you that means such a lot.Juliax

[Pishi123]

I don't think anytime is a good time. Try and give yourself little treats from time to time. Best wishes and keep strong.

[27-359 in reply to Pishi123]

Thankyou. I am still waiting to hear from the hospital about what to do next, but will keep everyone informed as I am going to be using this forum a lot now I can't get out!!!

[Rankij11]

Hi Jenny

So sorry you’ve got this extra worry at this time . I think I completely understand the part about your family . I think from today I’m taking the decision to isolate from mine . This is so hard as it’s what keeps me going , picking up grandchildren etc makes life seem normal and while I’ve never been down about the cancer this is making me feel really sad . I’m on olaparib and whilst my bone marrow results are holding up it gives me a ‘tight chest’ so feel vulnerable to the dreaded virus . I guess the way to deal with it is to think at least we can talk on phone etc . I’m really hoping that your ca125 is a blip only , maybe they will delay for a couple of months if it does need treatment? There never seems to be that much urgency ? The sun is out today maybe that’s a good sign ! Thinking about you

Jennifer

[27-359 in reply to Rankij11]

Yes you're right. It's the feeling of not being able to get a hug from those that care about us, that adds to the feeling of desolation.

Jenny

[SASSY196]

Jenny, it's not a pity party. You have a right to your very valid feelings. Sending you all my love and best wishes xxx

[27-359 in reply to SASSY196]

Thankyou.x

[Lyndy]

Hi Jenny

Sorry to hear that you are in this position... but as others have said try not to pre empt if you can. I had this kind of rise and was told they would not give me chemo until I had symptoms... but actually symptoms never arrived, it was a false alarm!

Really hope yours turns out to be something else... xx

[27-359 in reply to Lyndy]

You are right. I shall try and get on with my life until I know what I am dealing with.

Jenny

[Numi]

Sorry to hear that - it's something many of us have experienced, and all dread. Hopefully, as you're so in tune to what's going on in your body, it's been caught early enough to be quickly treated. A scan should be the next step. Keep in touch and let us know how you get on. x

[27-359]

I will. This forum is going to be my constant companion in the next few difficult months.

Jenny

[Porschadarling]

Very difficult time to be isolated so I know that all of us are happy to be there for you. A big virtual hug to you and stay safe so you will be able to get lots of family hugs soon! Blessings to you

[27-359]

Thankyou. X