Stressful time

[Angie1412]

Hi hope everyone is doing ok. I don't comment often but support this site. I was diagnosed in 2016 and have gone through so many treatments. My last one was in June which was weekly taxol. After a month I developed the shakes, i had a brain scan which didn't show anything so I was recommended to see a neurologist. This appointment is on Thursday. My CA125 level has risen so chemo has been cancelled. I have an urgent scan booked for the 2nd Dec and seeing consultant on the 3rd. I am so worried that they won't be able to offer any further treatment. I am getting so stressed.

[Katmal-UK]

Hi Angie. I assume that this is a pelvic scan rather than another brain scan? I can only imagine how you are feeling right now but hopefully there is further treatment then can offer you. Might be worth you giving Macmillan a call because I know the waiting is so bad and maybe they can offer you support? I have everything crossed for you for your scan and your results. Do let us know how you get on. Big hug. Kathy xx

[Angie1412 in reply to Katmal-UK]

Hi Kathy thanks for your message. Yes another pelvic scan but it wouldnt surprise me if they ask for another brain scan. If i could stop the shaking i would feel so much better. I can't drive and even putting mascara on is a nightmare! I have lost confidence in going out. Hope you are doing ok. Xx

[Katmal-UK in reply to Angie1412]

Hi Angie I hadn't realised the shaking was still continuing. That sounds a nightmare! I feel for you I really do. I have everything crossed they can sort this for you and get you some answers. xx Kathy xx

[Angie1412 in reply to Katmal-UK]

Thank you. I will keep in touch xx

[Nicky100]

Hi Angie, it sounds like you have a bit of a wait until you find out more. It is a really tough time for you just now, especially with little information. Have you tried the Macmillan helpline? I found them incredibly helpful and really experienced to talk to. Do you also have a CNS nurse who you could chat to and you could explain your worries?

I am sure they will have a plan for you, whatever the outcome, there are more and more options these days and combinations too.

I also try and advise people to get a second opinion if unsure about anything. I did a bit of research when mine came back and ended up going to London to meet a specialist who had more weapons up his sleeve!

I hope this week passes quickly, maybe try and keep busy with things you can do or enjoy. I find meditation helps with my worries and calms things a bit. Much love and do stay in touch here xx Nicky

[Angie1412 in reply to Nicky100]

Hi Nicky thanks for your text. I didn't think about Macmillan helpline. I will try them. It doesn't help being stuck indoors all day. Your mind works overtime. I tried wrapping Christmas pressies yesterday but I was getting so stressed my hands shook so much that the sellotape stuck together. I just wanted to do something normal. Hopefully Thursday's appointment with a neurologist will answer some questions. Take care xx

[Nicky100 in reply to Angie1412]

Good luck and lots of love xx

[Nicky100 in reply to Nicky100]

Please maybe PM me to let me know how you get on? (if you have time). Have you also tried Penny Brohn and their services? They are absolutely wonderful there- it made a huge difference to me xx

[Solange]

Hello Angie. I'm very behind in keeping up to date so am trying to have a catch-up . I'm sorry you're feeling so worried and stressed. I know how horrible the waiting is. Just want to wish you the best of luck for next week and hope all goes well.

With love and a hug, Solange. 😊🤞🍀

[Angie1412]

Hi Solange sorry I haven't replied. Have had a dramatic week. Managed to attend scan on Monday but by the eveningi was violently sick. I ended up in A&E for 9 hours and finally was admitted. Ran x ray which they think shows a blockage. Couldnt get report of scan as it is a different hospital so were working blind. I had 2 1/2 litres of ascites drained off and then was violently sick again. Discharged yesterday afternoon but i was violently sick again and had to go to a&e again and now back in. Hope you are ok xx