Our CEO Victoria has been asked to give a talk to a large group of clinicians. One of the questions she's been asked to prepare is: 'How can healthcare professionals help patients and their carers more?'
Obviously you are all the experts on this so it would be great if you could let us know your thoughts in the comments below. Victoria may quote you directly from the forum - there would be no personal identifying details but do let us know if you're not happy to be quoted.
Many thanks in advance for your help.
Ovacome Support Service Manager
I would like you to ask clinical oncologists not to make assumptions about patients as to how we will react and how much information we need.
Fewer consultants talk down to patients these days but it does still happen. I have been ‘talked at’ and had my input ignored (even though I was eventually proved right). I ask you to ask clinicians to have a conversation with patients and ask us how much we understand about what is going on with our bodies. They should ask us how much we want to know; and if we want to see the scan report and blood results then let us have them without having to fill out a form and apply through official channels.
That will do from me.
Thank you for speaking on our behalf,
Hi Iris I think you and I seem to be on the same page!