We're planning on including an article on the forum in our next magazine. We'd love to see more people using the forum and benefitting from this kind and knowledgeable community.
It would be great to include some quotes from you about your experiences of the forum. If you'd be happy for us to include a quote (we won't use any personal details, just the quote), please could you leave a comment below which we could add to the article?
Many thanks for all your help as always.
The Ovacome Team
Written by
TheOvacomeTeam
Partner
To view profiles and participate in discussions please or .
I'm quite happy to have my experiences outlined in the magazine. I was diagnosed in June 2019. Chemo, Avastin, surgery and now I'm on a reduced dose of Zejula - to be increased over time. I am in Australia. Kind regards to your wonderful team.
The forum is like a massive hive mind, sharing support and information, which gives us the confidence not to be passive, to fight our corner when we need to. Forum members can tell you what no oncologist or nurse knows and that is what it’s really like to be a patient and go through treatment. Members share generously from their lived experience to help others. It’s been a great source of support for me.
I joined this forum soon after my diagnosis in 2016. I have made many friends and have actually met a few of them in person at the hospital. The forum is a safe and informative place where you can express your good and bad experiences and get help from patients as well as from the admin staff.
I’m one of the patients that Naomi has met. We still stay I’m touch even though we are currently being treated at different hospitals. The forum is a great place to obtain “inside” information on what to expect from various treatments / drugs from a personal perspective, far more insightful than reading a page listing various side effects.
Most important thing I found out after joining this club was that there were loads of us in the same boat and ready to help with words of wisdom and give each other hope.
The Ovacome forum is an invaluable source of OC-specific information and support network all rolled up in one.
Need to know about the latest OC treatment options? Ask Ovacome.
Just had a diagnosis and don't know where to turn? Ask Ovacome.
Need support after a tough day? Ask Ovacome.
Worried about something? Ask Ovacome.
Need to discuss the really tough stuff with people who 'get it'? Ask Ovacome.
Not sure how to break news to your friends or family? Ask Ovacome.
Need to rant? Tell Ovacome!
The forum is always there. You can go from being the person asking for support one day, to the person who offers a friendly shoulder the next. Here on the Ovacome forum, we are people first, and a list of symptoms and side effects second.
This forum is my required everyday reading. I am 6 years past a diagnoses of HG 3b OC and don't know where I'd be without checking in on all the Teal Warriors here. I have an oncologist who is not very talkative and 85% of what I have learned about OC I have learned on this forum and thru my own research.
We've lost so may brave lady's here but have gained so many more. We have made friends and cried along with them as they share their story. We each matter here. We are all scared, fearful of our futures but the reassurance and support we get here is invaluable.
This forum has unfortunate members from all over the world and they all get you. This has the added advantage of when you have those middle of the night worries, there is always someone available to answer you. You can then find someone looking for support who you think I can help that person, so it’s a win win. There is such knowledge and experience on here and you will always receive multiple answers and support when you need it. It’s a worldwide self help forum.
I stumbled across the ovacome forum several months after my diagnosis and I'm so grateful I did.
I realised I was not alone in going through this experience.
It's a kind, safe place...you can ask anything.
Ive learnt so much from others experience and research. I know more about treatment options now.
I can occasionally offer help or support to others which gives me a good feeling.
It's a bit like having a group of really good old friends.. you can check in every day...or just occasionally. They won't mind, and they'll always be there you.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
