Rash on Caelyx?: Has anybody been on Caelyx and... - My Ovacome

My Ovacome

17,734 members19,974 posts

Rash on Caelyx?

Etakeloop profile image
17 Replies

Has anybody been on Caelyx and developed a blistery rash on their palm? It came up so quickly today and my hands are very tender

Written by
Etakeloop profile image
Etakeloop
To view profiles and participate in discussions please or .
Read more about...
17 Replies

Yes- very sore and itchy. Not until the 5th treatment. Used Eucerin for this and dryness

Nancy222 profile image
Nancy222

Sorry you're experiencing this.

I got the rash on my feet (it's called hand and foot syndrome). Call your team asap and ask for their recommendations. There might be a cream they can prescribed or recommend.

When my rash flared up, I wrapped my feet in a plush towel I have in the freezer, and put ice packs under the towel. And I creamed and creamed and creamed my feet. It luckily went away. I had difficulty walking.

This rash can really get nasty so get some medical help. I googled it and some people had really bad rashes. Keep putting a good moisturizer on your hands especially after you wash them. Someone here said she went on the Caelyx manufacturer's website and read that we shouldn't use a cream with glycerin. I haven't checked this out for myself because I have no doubt she's correct, and I'm off Caelyx now.

Best wishes,

XXOO

MissEd profile image
MissEd

Yes my mum did. They then prescribed her with steroids and steroid cream which helped alot x

Yes I had that I was prescribed cream which helped a lot, mine eventually just shed off the dry skin and didn’t reoccur so I hope yours does as well.

JanePW1965 profile image
JanePW1965

Hi - my mum had Caelyx. (2nd line). After the third dose her hands became so sore and started cracking. Her feet were affected too and other parts of her body. She had been using the small ice packs and Udder cream. But, things got so bad the 4th dose had to be reduced by 20% and things were fine after that. Good luck. Jane x

Juleswhee profile image
Juleswhee

Hi I have had a rash but not as bad as yours , plenty of creams all the time , I have found Aveeno and E45 to be good . Julia x

Hopefulgal1 profile image
Hopefulgal1

It’s common to have skin probs with it.. I recommended another lady MooGoo as it's amazing - really helps. The original moisturizer ( quite costly but worth every penny as she agreed her chemo had been stopped and she could continue with it ..) xxx good luck

angeladale profile image
angeladale

Oh dear,my rash was all over my bottom , like dreadful , untreated nappy rash ! Foot and hand are common with caelyx sadly , but mine was so horrible the Prof gulped in horror when he saw it ! Took me off it and put me back on cisplatin ....and the rash went in a week . Used Boots natural baby cream and bath stuff . Cheap and excellent xx

Hi . Yeso. Am on 5th of 6 caelyx treatments and hands became very very sickeningly itchy after 3rd . At most acute very red swollen and itchy but not blistered . Need to keep cool . I was doing ice packs .Pharmacist recommended EURAX cream which has ingredient to treat itch and antihistamine tablet. I also use Moo Goo balm from health food shop . They are drying out and peeling now despite cream +++

Elfed profile image
Elfed

Funny, I’m just sitting in the doctors cos I’ve got a blister type rash between all my fingers, so yes 😁. I got it slightly with my 4th chemo, but this 5 th one it is definitely worse along with sores in my mouth, that are a real pain in the butt 🙄

Etakeloop profile image
Etakeloop in reply to Elfed

My 5th dose too and yes mostly in between my fingers. Will be phoning my oncology department tomorrow to find out what to do

Elfed profile image
Elfed

I’ve just been prescribed a steroid cream and a moisturiser to use, my hands are an irritant, but it’s the sore mouth that’s a real pain

HI,I had blisters on my hands and under my arms my oncologist gave me steroid cream and that cleared it up. make sure you use a good rasterizer,and you are coming into cooler weather this will be better then being hot.

Take care hope the Caelyx gives you good results it did for me any tips about Caelyx you are in the right place from our lovely ladies Lorraine xx

Etakeloop profile image
Etakeloop in reply to lorraine71-Australia

Lorraine, I am an Aussie too so no cooler weather coming lol

lorraine71-Australia profile image
lorraine71-Australia in reply to Etakeloop

Hi, Make sure you are cool as possible wear cotton and cotton nighties, as this is were I got my blisters where ever I was hot under the arms and under my breast so keep cool .Where do you live ? as I said I hope Caelyx gives you good results take care Lorraine xx

Etakeloop profile image
Etakeloop in reply to lorraine71-Australia

I'm in WA

barboo profile image
barboo

I've been very lucky so far, I'm on my 4th round of Caelyx and haven't developed a rash as yet although, my consultant did warn me about it as a possible side effect. Sounds awful.

You may also like...

recurrence with caelyx

down to 97, 3 to go. I'm handing caelyx ok so far no hair lose had bad rash all over my body the...

Caelyx as maintenance

Has anyone in the UK had experience of this and how did it go? Niraparib has not worked for me!...

On the caelyx merry go round!

morning everyone! Well started 2nd line treatment of caelyx 2 days ago - feel pretty good so far...

Carbo/caelyx not working

reoccurence after 6 months. I had 3 treatments of carbo/caelyx. It didn't work. CT showed...

After caelyx & carboplatin

Hi there, I’m having my 6th cycle of caelyx & carboplatin but not sure what will happen yet! I...