Hello sisters! 🌷: Just had a thought in my head... - My Ovacome

My Ovacome

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Hello sisters! 🌷

Zena41 profile image
17 Replies

Just had a thought in my head as I’m starting to panic again 🤣

I’m coming up to first check up in Aug with the lovely prof.

Wondering if anyone had surgery for low grade with no chemo after ??

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Zena41 profile image
Zena41
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17 Replies
Kryssy profile image
Kryssy

I do hope that you get the best news. You fought for what you wanted and deserve to win my lovely. Big love xxxx

Zena41 profile image
Zena41 in reply to Kryssy

Thank u means a lot xx

Cropcrop profile image
Cropcrop

You’re getting the same jitters I get every time I go, I’m back there in August too 😬. Hopefully we both have routine appointments ❤️Xx Jane

Zena41 profile image
Zena41 in reply to Cropcrop

Hi Jane. What date are u there? Yes jitters is the word. No one else understands xx

Cropcrop profile image
Cropcrop in reply to Zena41

I’m there on the 23rd at stupid o clock in the morning 😂 when are you there? You’re right nobody understands the nerves unless they’ve actually been there, we all know don’t we 🤨. ❤️Xx Jane

Zena41 profile image
Zena41 in reply to Cropcrop

Hiya I’m 13th Aug. Going up nite before staying in nurses accom.

My last appt was a clear scan at christies April 🙏🙏🙏

But I just don’t trust the bugger!! Are u in London already? Xx

Cropcrop profile image
Cropcrop in reply to Zena41

🤞🏻 Your next appointment will be clear too ❤️Xx Jane

Jo2305 profile image
Jo2305

I had surgery last Nov after 3rd line chemo with no chemo afterwards - low grade

- touch wood all ok so far, away with my friend in Spain at mo and living it up always! Good luck brave lady xx

Zena41 profile image
Zena41 in reply to Jo2305

Ooh Spain whereabouts?

We are going Ibiza sept (cheaper)

That’s if prof lets me go 😳🤔

🙏🙏🙏

Jo2305 profile image
Jo2305 in reply to Zena41

We’re in Benalmádena now, I’ve just come back from Marbella with my husband 2 weeks ago 🌞 the reason it’s so close is because my friend is a teacher at college so we had to fit it in before the summer hols x

He will encourage you to go I’m sure so don’t worry XX

ZenaJ profile image
ZenaJ

It's always a worry just before appointments but I'm sure you'll get some good news. Yet again I'm unable to give out any advice but I still send you good wishes. The other Zena x

Maus123 profile image
Maus123

Always a tricky decision... the treatment for low-grade OC.

Initially I had the debulking surgery for borderline with some low-grade serous OC, then just watch & wait for a bit more than 2 years. After low-grade recurrence in some lymph nodes, I had a laparotomy surgery again. This time it's followed by chemo but only because I need to check that off to stay aligned with the German guideline, otherwise we would have gone straight to Letrozole. Personally, I believe chemo is not very effective for low grade but hey... gotta try at least once, to make the insurance happy. ;)

Good luck with the check up.. all fingers crossed for you. Maus

Di16 profile image
Di16

I was initially diagnosed 10years ago, & still get some nervousness before appointments. I have a scan next week &I appointment the following week. I had surgery with no chemo for gct, a rare type of oc, which is usual in U.K. for that type. The beast did come back though. Di

Madmarilyn profile image
Madmarilyn in reply to Di16

Thinking of you then Di. I'm off for my 3rd GCT surgery next week, but will be thinking if you, please let me know how you get on!

Maxjor profile image
Maxjor

Zena--I am doing the NED dance for you over here. Don't let the C win by thinking about it TOO much--enjoy till August, then have a semi-stressful wait for the all clear, then you can be relieved again! oxox

Sana59-US profile image
Sana59-US

Hi Zena,

I was diagnosed with low grade serous in July 2017. Did not have chemo and instead Started Letrozole in September of 2017. Had scan last January and it was clear, just had scan again last week and it was clear again.

I was very anxious the entire month before, going for results it’s like going in front of a firing squad😊 I think we all go through the anxiety and just hope it gets easier as it looks like follow ups are none ending.

Hang in there and best wishes! Sending love and positive thoughts your way💗

Sudana

gwyn64 profile image
gwyn64

Hi Zena,

We just got back from week in lovely Cornwall. Lovely weather and lovely time - camping.

Zena when did you get your review appoitment from our lovely Prof? I was in just before you but not received an appointment yet. Post surgery I was put on Aromasin - no chemo - low grade doesn't generally have the same degree of success as our sisters with high grade.

Best wishes. Gwen xx

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