Hello. I'm new: I stumbled across this and have... - My Ovacome

My Ovacome

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Hello. I'm new

Unlockes profile image
14 Replies

I stumbled across this and have so many fears I was diagnosed unstaged Ovarian cancer in October 2016. I've been in remission and my last scan showed two lesions on my liver. I am so scared.

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14 Replies

Hi, Welcome to the site it's always hard to have a new lady join but this is why we are here to help each other as much as possible with advice, encouragement, what ever you need.

We all understand your fears the worse is not knowing but as soon as your team has a plain in place you will feel better, try a get a phone number for your clinical nurse she can help when you just need to talk to someone.

On this site you will find lots of ladies who have been on here for years, I've been on here now for over 3 years and I don't intend to go just yet.

Try to keep your chine up I know it easier said then done, take care Lorraine xx🎉🎉

Unlockes profile image
Unlockes in reply to lorraine71-Australia

Thank you Lorraine it's a comfort to know I am not alone

lorraine71-Australia profile image
lorraine71-Australia in reply to Unlockes

💙💛💜💚 you will never be along on here..

Yoshbosh profile image
Yoshbosh

Hello Unlockes,

Welcome to our forum! I’m glad you have found us - we’re a friendly and supportive bunch 😊

There are a lot of us in a similar situation to you - waiting for more information is hard. I hope you have a supportive medical team that you can talk to and trust.

Vicki x

Sunfleury-UK profile image
Sunfleury-UK

Hello and welcome.... sorry to hear you'e been left with this worrying information. Have you had an opportunity yet to discuss what this means for you with your consultant or CNS? It's difficult if you've been left with this.... you're definitely not on your own though & there's always folk here with support, knowledge, kindness & good humour! Wishing you hope & strength, Sx

(FWIW I had a scan at about 2 1/2 yrs post treatment which showed up 3 x liver lesions. I was really freaked out!! It was inconclusive as to their nature. I was scanned again about 8 months later and as there was no change, its been left as no concern since then. I am now +5 years)

Unlockes profile image
Unlockes in reply to Sunfleury-UK

Hello and thanks for the welcome. It's comforting to know that other women are going through similar struggles. I pray these lesions on my liver are scared tissue or just lesions that are just there. I will keep my fingers crossed for good results.

Unlockes profile image
Unlockes in reply to Sunfleury-UK

Thank you Sunfleury that is just what I needed to hear.with all the negative arround to hear your positive story is just what I needed!

Seasun36-uk profile image
Seasun36-uk

Hi Unlockes. First of all, welcome to a wonderful, supportive forum. I am also new. Reading others experiences, I know that you WILL be looked after and offered advice & appropriate treatment at your Oncology Unit. There are many new pioneering treatments now. Remember there is the Ovacome helpline & of course the replies you will receive here. Love ❤️❤️

Unlockes profile image
Unlockes in reply to Seasun36-uk

Hi and thanks for responding I will be getting a biopsy on Monday morning and I can't wait I'm anxious answer scared.

Neona profile image
Neona

Welcome to the forum. I have cancer that had metastasised in and on the liver. I am on a phase one clinical trial called Patriot- I haven't had my first scan yet though.

Unlockes profile image
Unlockes in reply to Neona

Thanks for the welcome Neona. I am trying to stay positive but it is really hard sometimes. I wish you luck...stay positive

Welcome to the site, the ladies on here are kind and supportive and I hope you will ask as many questions as you have, I imagine your onc is talking at more treatment at the moment, does he have a plan of action for you?

Unlockes profile image
Unlockes in reply to

Hi Suzuki and thanks for the welcome. I have finished 6 rounds of taxol/ carboplatin been in remission since May and these two lesions on my liver were found on a routine scan.

Cnmart profile image
Cnmart

Welcome to the site Unlockes!

I'm also pretty new here but have already found it to be the most wonderful resource. It's so important to have other people you can turn to who understand what you're going through.

I hope you feel more at ease soon and keeping my fingers crossed for good news!

Best wishes Christina xxx

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