Feeling silly.

[Beckyjh]

So when I go in for my 3 monthly check ups I also get my port flushed in the chemo suite. I have just had to ring up to ask if I can move the appointment to the following week. I spoke to one of my old chemo nurses. Despite me not having been there for 6 months he knew exactly who I was, asked about my Christmas and wished me a happy New Year. They must see hundreds of patients over the months but this has really touched me and made me feel quite emotional. I have hopefully been NED since June and am feeling well so why do I also feel relieved and somehow reassured that they are still there and know me? I guess having that safety net there will always be a comfort even if I hope against hope that I won’t have to use it again - or certainly not for a long while yet (perhaps the large glass of red wine I had at lunch with an old friend hadn’t helped my emotional state!!)

Happy New Year everyone x

Becky 😊

[Kryssy]

Hi Becky,

Don't feel silly about the safety net. Both Janet and I feel that at the end of our chemo we are left feeling stranded - Janet has already finished but my ending is delayed for now. Having the chemo nurses and doctors fussing about us is a real comfy security blanket. It means that others are responsible for making us well, even though it's just for a few hours. When my chemo eventually finishes - perhaps next Tuesday if my platelets are up - then I shall miss it enormously. Stupid, but true.

You take care and I hope all you get is good news from now on.

Kryssy xx

[Katmal-UK]

Not silly at all Becky. I always find it so comforting that the staff remember me (hopefully for all the right reasons). I believe that they truly care. Happy New Year. God Bless xx

[Janet235]

Yes, know exact.y how you feel...

Do you have your port flushed weekly elsewhere?

I decided to ' keep ' mine, ( you know, just in case....) and have grown quite attached to it, hah hah... but was told it needed a small amount of blood drawn from it weekly then flushed through with saline..

This was set up from the hospital with the District Nurse who came yesterday, witha full care plan and questionnaire 😳 Along with a major bag of caps, syringes and wipes. I have yet to ask own GP for the actual saline ampoules...

i will have it done at The hospital over next two weeks as I have scan and follow up appt but after that I will go to the health centre weekly.

So week

So - flush or every 3 months on the check ups... ? Hope they continue to bring positive news for you

Janet x 🌈

[Beckyjh]

I only have my port flushed every 3 months. Apparently it could be just every six months but I time it to coincide with my oncology appointments.

[Caroles1]

Hi Becky,

I think they are all special people, think you would have to be. When I go up and see anyone from the chemo suite, we all hug, get quite emotional and they are so glad I am still ok, it probably makes their job worthwhile.... it's a job I couldn't do.

I raise a glass of red with you to wish them well for 2018 and more,

Carole xx

[antheamary]

Do you think they've made a mistake? You need to flush a picc liñe weekly but not a port.