1st check up: This week I'm having my first... - My Ovacome

My Ovacome

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1st check up

Chezp profile image
20 Replies

This week I'm having my first 2 month check up and have turned into a snivelling, unreasonable, hormonal, scared it's back wreck who also has horrendous pain in my ankle. (Despite reflexology every week) it hurts!

Not sure any of this is normal at all?!?

Thought I was doing ok till this week.....🌻😃😳

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Chezp profile image
Chezp
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20 Replies
rareoldme profile image
rareoldme

You are doing ok. Emotions, tears, fear, all ok and totally normal. I don’t know you or your history but if anyone can be ok with any of this then that’s a worry!

Hope it goes well for you

🤗

Chezp profile image
Chezp in reply torareoldme

Thank you x

kristinaapril profile image
kristinaapril

Chezp,

I think the anxiety and fear leading up to a check up is normal. My mom had her 2 month check up last month; and the week before, every ache and pain she had, she attributed to the beast making a return.

Sending you calming wishes,

Kris x.

Chezp profile image
Chezp in reply tokristinaapril

Thank you x

AndreeP profile image
AndreeP

Hello! Don’t fret, I too turn into a big ol’ mess when I get near my check up, only mine are every three months. It’s terrible because we spend time fighting the disease then it seems like we sit around doing nothing, just waiting for it to come back when we are off treatment. My friend calls it scanitis. One of the things you can do is ask the oncologist what signs to look out for in case it’s coming back or on the grow again so you can approach the check up time a little less anxious. Mainly don’t worry, my oncology nurse tells me this is common occurrence, the dreadful waiting is part of this dreadful disease. Not sure about the ankle pain, again speak with the oncologist, this could potentially be a side effect of drugs. Hope you feel better soon and good luck with the check up.

Chezp profile image
Chezp in reply toAndreeP

Thank you, I hate feeling like this..... X

Solange profile image
Solange

I'm sure there are so many of us in this Group who will sympathise with how you feel, Chez. I certainly do. It's a frightening time and one we have to get used to. Mostly I'm fine and positive but even though I've just celebrated still being here after being diagnosed eleven years ago, I still get the same horrible feelings at check up time. Even more so when I've had a scan and am waiting for the result - which will be the case after I've had my CT Scan on Friday.

I hope all goes well for you and you feel heaps better after your check up so you can go on to enjoy a very happy Christmas. 🤞 Eleven years ago I had my first Chemo on 22nd December and really didn't think I'd be around for the following Christmas..........😊 Love, Solange xx

Chezp profile image
Chezp in reply toSolange

Oh bless you, as always with this journey it's the not knowing... Thank you x

babyboy1 profile image
babyboy1 in reply toSolange

11 years!! That's wonderful!xxxDawn!🌺🌺

Nicky100 profile image
Nicky100

It is normal and especially in the earlier days too as it is all so new and terrifying. Your emotions will be all over the place potentially.

Have you tried any mindfulness or meditation? It really can help. I found guided meditations on YouTube to be very helpful.

I dan send you links if you are interested or you can google them.

I hope your fear subsided. Walks and being outdoors also helps. Bring active and distracting yourself.

Love Nicky xx

Chezp profile image
Chezp in reply toNicky100

Thank you Nicky x

Jo-Jo1-UK profile image
Jo-Jo1-UK

Hi there, yes I agree completely with what the other ladies say. I've had a few 3 month reviews now and each time I get anxious for a few weeks before hand. You've also got added pressures this time of year with the build up to Christmas without adding cancer reviews into the equation! Keeping my fingers crossed for good news, you can then relax and have a nice Christmas. Jo xx

Chezp profile image
Chezp in reply toJo-Jo1-UK

Thanks Jo x

Purple-iris profile image
Purple-iris

Hi

Yes it’s very normal to get anxious before a scan especially after treatment has ended . Any little ache turns into a possible recurrence. As Nicky posted have you tried mindfulness, or try and stay active . Being outdoors for me always helps although easier in the summer .

I had counselling when I finished my chemo , which really helped . When having treatment your survival mode takes over but when it stops your emotions go into overdrive and everything you have been through hits you . You start to get back to a new normal and then a scan or check up comes along and all your emotions are shaken up again !

I am just finishing a fear of reccurance course at guys through the Dimblebycancercare centre . Trying to learn to accept that the fear is probably always going to be there but not to let it stop me from enjoying life , and making the most of everyday .

Due to finish my Avastin in January so have been used to 6 weekly blood tests and the reassurance of frequent CA125 tests ( mine has been a good indicator ) So got to adjust to no treatment and probably 3 monthly checks 😳

Good job I have our rescue dog to walk , although not so keen this morning as have heavy rain this morning .

Good luck for your scan , keep busy and maybe consider asking for some counselling or if there are support groups at your local cancer centre .

Love and best wishes Kim x💜

Purple-iris profile image
Purple-iris in reply toPurple-iris

Sorry forgot you mentioned awful ankle pain so maybe difficult to stay active at present . Remember to discuss with your team , would physio help ? I go through periods of terrible stiffness on the avastin where I can hardly walk when I first get up but luckily it normally eases . Also had a couple of months with a painful knee ( was always week even before my chemo) and had to do exercises to build strength back in my core and glutes to stop my knee taking all the strain . Maybe physio could give you some exercises to strengthen your ankle .

Hope they can suggest something that helps . Love Kim x

Chezp profile image
Chezp in reply toPurple-iris

Thank Kim, I am hoping the team comes up with a plan as the pain is too much at times X

Chezp profile image
Chezp in reply toPurple-iris

I think I will ask Kim, thank you x

Yoshbosh profile image
Yoshbosh

Like the other ladies have said, the anxiety is normal, and awful! I hope your appointment goes well - I’ll been keeping everything crossed for you. Vicki x

Chezp profile image
Chezp

Phew! Ca125 remains the same. Good. And ankle being investigated had a X-ray today and new pain medication. Thank you all for you're support as always, I think I just have to learn to deal with this new fear... I've not got 8 week till I see the team again....Whoooo hoooo. Fingers crossed you all have some peace this season xxx

Caroles1 profile image
Caroles1

Hi,

It's all normal, I have 3 month checks, 2 months are fine, then 1 month I am irritable,tearfull, emotional and don't sleep well.

We just have to live and cope with this however we can, you are doing ok and there is always someone here to talk to,

Carole xxx

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