Trying not to worry

[antifer1234]

Going for a CT and MRI scan Monday morning first one since July. Not looking forward to the banging of the machine. Then comes the weeks wait and all the possible results building up in my mind. I'm away on hols for 4 days at the weekend so hopefully I can be distracted a lot of the time and will be in the company of close friends and one of my daughters!! Any tips on how to ease the waiting game??

[Alifit]

It’s hard isn’t it? I’m waiting for the results of a scan to see why my CA125 is going up. I find out on Wednesday - so next week involves three visits to the hospital - Monday for bloods because I like the consultant to have the most recent results for my appointment with her on Wednesday, then all being well my second to last Avastin on Friday. Try to enjoy your holiday in the company of your friends and your daughter - aren’t we lucky to have friends and relations there for us?

Hope all is well - I’ll be thinking of you, best wshes, Ali x

[antifer1234 in reply to Alifit]

My daughters and friends have been amazing, I feel so sorry for people with no one. I hope all goes well for you. Where are you being treated? Let us know how you get on please.

[Alifit in reply to antifer1234]

I’m in Birmingham - I’ll keep you posted - you too please.

Stay warm today!

Ali x x

[antifer1234 in reply to Alifit]

I live in Bewdley but go to the marsden.

[Alifit in reply to antifer1234]

Lovely Bewdley. As I’m probably recurring and depending on what they say, I may ask for a second opinion - is the Marsden a good bet? I’m PPC Stage 3c.

Ali x

[antifer1234 in reply to Alifit]

What is PPC?

When I was diagnosed I went to New Cross Wolverhampton but I have a daughter who lives in Aylesbury so she suggested the marsden as a pp as I have BUPA cover. I have been so happy with my consultant and still am. Can give you her name if you pm me. I was diagnosed in Dec last year stage 4 with bits near my heart, liver, large bowel and diaphragm. I havnt been de-bulked!! Have you had the op?? I am due my 10 th Avastin on the 5 th and the dreaded results. Hope your results are good, let me know.

Anthea

[Alifit in reply to antifer1234]

PPC is Primary Peritoneal Cancer which presents in the Peritoneal cavity - my biopsy showed that it was of ovarian origin. I had a tumour on my omentum - I didn’t know I had one until then! In my case, the tumours are on my stomach wall and on a blood vessel which supplies the stomach. My surgery was what they call sub optimal, meaning that they didn’t take everything away as the surgeon felt that the disease may not affect my uterus etc, but that I needed to have chemo as soon as possible. They weren’t able to remove the tumour on the blood vessel as that may have compromised the blood supply to my stomach.

I’ll PM you about your consultant, but maybe not until I’ve seen the consultant on Wednesday.

Off out to the farmers market now in the sunshine!

Have a good weekend, Ali x

[Katsmum]

Distraction is the key and when the thoughts come flooding in you need to tell yourself to stop thinking about it and maybe read or watch tv if you are on your own. It’s hard but I try and only let myself worry on the day! Do they let you choose some music in the MRI scanner? I think I went entirely through a whole cd which the started all over again but it was quite nice getting lost in the music!

All the best

Jane xx

[antifer1234 in reply to Katsmum]

I am trying not to think about it, yes I do have music too. The scans not too bad it's the waiting a week for the results!! What is your situation? Thanks for the reply.

[Katsmum in reply to antifer1234]

Stage iv high grade June 2015 - just completed 2nd line chemo after a year of avastin. Scan results last Thursday show shrinkage but still have bits in the liver, lung and abdomen so having three months off ! Glad of the break but no doubt will be back for more treatment in the spring! Meanwhile I am going to enjoy Christmas. Just off to a Market to spend all my money lol! Have a good day

Love and hugs

Jane x😁

[January-2016-UK]

Enjoy your weekend. While waiting for results / scans etc I try and tell myself whatever is there, is already there and no worrying from me is going to change that. It helps. Sometimes I try and imagine what is the worst that could happen? And the worst is that I’ll be told the treatment is no longer working and that we must try something new. Having imagined the worst, and mentally faced it, then I try and concentrate on what would be the best news.

I’m guessing you’ll be enjoying yourself in good company.

All the best!

[antheamary]

I really disliked the mri machine. I was very nervous & miserable. I worried about evetything. I am not so keen on ct scans now. I was sick after the last one. I think i have got worn down with all these interventions. Our bodies do their best but we just get tired. A holiday is lovely to look forward to. All the best.

[antifer1234 in reply to antheamary]

Thank you for your kind thoughts. Anthea