Morning everyone.
Have just read the above article on the BBC News website and it was as if they were telling my story.
I found it an excellent piece. Reassuring to have the experience I am sure many of us share acknowledged and brilliantly articulated in a way I can never quite manage. I want it on a t-shirt!
Also made me feel proud to be in our little gang who just get on with it. We ladies are just fabulous.
Have a good day warriors!
Up early, reading posts! I will read that one next.
There are lots of back and forth opinions on this forum related to high fibre v low fibre / low residue * diets. Strong opinions!
I was advised this * a few months ago due to scan showing narrowing in the small bowel. I stuck with it for about 3 weeks gradually, then introducing my more healthy diet . Taking a docusate sodium tab a day ( plus more around days I have my weekly taxol treatment) I have functioned more or less normally.
The main things I do now as a nod to low residue is avoid very high fibre fruits and veg ( you can google lists to find out which....), cook veg well and avoid raw. Take skins off apples , pears and plums etc. Stew fruit more. Soak oats for porridge overnight for breakfast, eat white rice, pasta and more white bread now - but not all the time. Also avoid too spicy foods,
Mainly CHEW well and eat slowly. Eat smaller amounts through the day. Sip water or juice ( I would say perhaps not mango or prune juice or any with lots of bits in ) between mouthfuls - I try to be mindful of food going through my digestive system kindly if that makes sense..
The mango will pass ha ha just drink water to help it through...
You'll find a trial and error way through this...no panic! Janet 🌈
Oops just realised I mixed posts and wrote a lot of stuff about diet after!! supposed to be on Caddies who posted next
Perhaps I got up TOO early!!
Janet -
Yes, great stuff. I saw an interview relating to this on BBC breakfast this morning - inspiring lady with Stage 4 breast cancer and someone from Macmillan. Much talk about needing to change the terminology we use when talking about incurable cancer and educating the public about the number of us who live quite normal lives despite ongoing treatment and the threat of recurrence.
bbc.co.uk/news/health-41899203 will take you to the article.
Interesting article. I have stage 3 OC, grade etc unknown to me. I have the same outlook as the lady in the article. I don't want to know anything regarding a prognosis, although I was told I had 'a couple of years' 10 years ago. Works for me, still here 10 years on from diagnosis. Not saying my mindset has added to that length of time, just feel I have been lucky and live each day as best I can. xx Kathy xx
saw this on tv today....the person concerned was stable I think but knew others who weren't...we all do our best for ourselves, those we love and the wider community it seems to me...hats off to us!!!
Thanks for sharing flamingobee - so much to identify with in this - mine's advanced, incurable, new uncertain treatment at the mo, I've 2 children, good to hear our stories out there. Hope you're doing OK
x
living with ovarian cancer for 8 years and counting
Living a long time with late stage Ovarian/peritoneal cancer
