Ovarian: Two years ago I had a very large tumor... - My Ovacome

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Ovarian

hg1234 profile image
hg1234
β€’33 Replies

Two years ago I had a very large tumor and all my insides taken out.My appendix as well, however my dr wanted to see where my cancer would go. Now my daughter in law states I am only seeking attention as I should be fine and don't need to see a cancer doctor Is that true

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hg1234 profile image
hg1234
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33 Replies
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Lyndy profile image
Lyndy

No m'dear she is wrong. Ovarian is very good at coming back..so sadly you will need to be checked out periodically. Love to you xx

I would hope you had follow up appointments post surgery, maybe go along to your gp explain your symptoms and let him take it from there

keeponkeepingon profile image
keeponkeepingon

Your daughter in law is very wrong, you should be having regular check ups at the hospital. Hope you are doing so.xx

hg1234 profile image
hg1234β€’ in reply tokeeponkeepingon

Thank you my thyroid became in larged on both sides with lymph noid envolvement but she decided that was okay too. I was told my cancer was low level maligent

Tesla_7US profile image
Tesla_7USβ€’ in reply tohg1234

hg1234, After reading this I am concerned for your safety. Does your daughter in law wish you harm? Is she your caregiver? If so, get away from her. I am not joking.

Choski profile image
Choskiβ€’ in reply tohg1234

Who decided it was okay? Your oncologist? Or doctor? What tests were done? Just a few quick questions, did you have a CT scan to check? If not maybe ask for one.

Clare xx

hg1234 profile image
hg1234β€’ in reply toChoski

Daughter in law did.Cancer dr did not.My tumor was from hip to hip ,up to diaphragm and on my kidneys.I had kidney shut down five days post op.My husband died one day before I found out that I had cancer

Choski profile image
Choskiβ€’ in reply tohg1234

Oh my goodness, what a lot you've had to contend with, that must have been so so very hard, do you live with your son and daughter in law or are they near you ?

You need regular oncologist monitoring until ge if she says it's time to reduce the visits/checks etc but you must always always be vigilant

Hopefully you do have friends and family so don't feel alone, if not we are all here xx

hg1234 profile image
hg1234

Thank you all thought I was crazy

Spencer2016 profile image
Spencer2016

Unless she has a crystal ball, I would disregard her "opinion" and make those decisions with your doctor. And yes, you do need to be under ongoing long term care/monitoring of an oncologist.

Out of respect to you I'll not say what I would tell her 🀐 I hope she is a more compassionate and responsible spouse than daughter-in-law.

But- let's secretly hope she was right. πŸ˜‰

Best,

Anne 🌸🌺🌼

CallmeMum profile image
CallmeMum

Hello lovely,

What a horrid b**ch absolutely NO WAY should you stop seeing your onc! Who the hell does she think she is? I'm sorry I don't know her but she has no idea what you're going through, my special person still gets symptoms now and she is seeing her onc periodically she's 2 years down the road and had 1 reoccurrence last year. She needs to understand that it's a chronic disease that doesn't really go away it's only ever managed.

Xxx

Hi. Totally agree with Anne, you would not be told you need follow ups by the doctor if they were not nessasary, mine was only borderline but I was pleased when I was told I would be monitored for 5 years. Ignore your untrained d-in-law, the Dr is the professional... xx

Just to add. Hubby has been 'monitored' since 1990 for his cancer, nobody has ever said that he was attention seeking in 26 years!! X

Tesla_7US profile image
Tesla_7US

hg1234, ignore your daughter in law. She is totally wrong. You need to keep in touch with your doc regularly. Gynecological cancers return with very high frequency. It is not attention seeking to pro actively monitor your own health. Very sorry your daughter in law is dangerously uninformed.

Howick01 profile image
Howick01

I believe that a lot of people think that if you had your ovaries removed the cancer cannot come back.

I even had to explain this to some nursing colleagues!!!!!

Please continue your check ups and take care x

Choski profile image
Choski

Hello and glad you found this forum, you've already had loads of lovely replies all telling you youDO need regular check ups and monitoring and I just wanted to add mine too,

You DO need regular check ups and you also need to be aware of any symptoms you may suddenly have out of the blue. God forbid your DIL ever gets ovarian cancer,she sounds ill informed however a lot of us were before it happened to us

Regular check ups, monitoring yourself and flagging to your doc or Oncologist anything out of the ordinary WHILST also trying to live your life as normally as possible.

You are RIGHT

take care

Clare xx

charlie12 profile image
charlie12

It sounds as if you had the same diagnosis as me , a borerline or low malignant potential tumour. Sometimes they are found by non oncology ob/gyns and if surgery is successful then you are monitored for anything up to seven years. In America some people are seen for life. I was diagnosed in 2010 and since I have seen some people with LMP tumours recur and have very difficult journeys. So what she is saying is garbage basically.

Try to ignore her.

hg1234 profile image
hg1234β€’ in reply tocharlie12

Thanks I had a 15 pound tumor that was full of cancer the onc said he got it ,three days later he said I was a gray area and let's see where the cancer goes

Cropcrop profile image
Cropcrop

Well I've nothing to add to all the advice youve already been given above, but, I just want you to be well so please see your doctor as soon as possible and disregard your daughter-in-law. Maybe she needs medical care too? Take care, big hugs ❀xx Jane

Spencer2016 profile image
Spencer2016β€’ in reply toCropcrop

Good one Jane

Caroles1 profile image
Caroles1

I agree with all of what has been said,you are not going mad,attention seeking? Huh! Anyone who said that to me would be kicked into touch (difficult as she's your d in law),Lets hope she never has a life threatening condition.

I can tell you if any of us wanted attention I'm sure we could think of better ways to get it.

You do need to be checked regularly,I am checked every 4 months,I don't like it,but,it's thanks to those lovely checkers I am still here and NED.

Give your d in law a kick up the arse from me

Love Carole xx

Biscuitqueen profile image
Biscuitqueen

Oh don't listen to her! Only you know your body and as others have said, OC is very good at coming back so you should keep going for appointments and scans - I'm sure it won't come back but it's wise to keep a check on it.

hg1234 profile image
hg1234β€’ in reply toBiscuitqueen

I believe something came back as I have bloating again can't eat but my weight is crazy and lots of indigestion

Choski profile image
Choskiβ€’ in reply tohg1234

Back to your doctor or Oncologist ASAP Tomorrow PLEASE . Do not leave these symptoms - get checked ,ask for another CA125 blood test and an ultrasound scan or CT.

January-2016-UK profile image
January-2016-UKβ€’ in reply tohg1234

Call your medical team on Monday. It's important.

Caroles1 profile image
Caroles1β€’ in reply tohg1234

Get it sorted hunny, the sooner the better as you have the best chance,that was me2 and a half years ago and I am still here, please let us know how you get on,it may be nothing but you need your mind put at rest,

Carole xxx

Tesla_7US profile image
Tesla_7USβ€’ in reply tohg1234

hg1234, see your doctor immediately. These are serious signs you need treatment ASAP.

Mrs_Atko profile image
Mrs_Atko

Each and every member on here that has already replied has give you GOOD, HONEST and CLEAR advice. Your daughter-in-law is very, VERY wrong and should not be listened to. I'm sorry you lost your lovely husband just before your diagnosis...that must have been incredibly difficult at an already challenging time. Do you have any other family around you? Friends at least who you can share your concerns with, especially about your daughter-in-law?

I'm also a borderline/low malignant lady and i'm being regularly monitored after having a large tumour removed last summer along with my right ovary, fallopian tube and appendix. You should be regularly monitored too. If a reoccurrence happened, catching it early is life saving. If you are having symptoms again please, please, PLEASE go back to your GP or Oncology team and get tested/scanned. Don't let anyone else play with your life. Please let us know how you get on and in the meantime, disregard your daughter-in-law's comments. They are not only unfair, they are UTTERLY unfounded. We are all here for you. Jemima xx

hg1234 profile image
hg1234β€’ in reply toMrs_Atko

I have only my son who is married to the one who states I am fine.I had a stroke and haven't driven in three years but I am looking to do so again.She sold my truck so I am looking for a cheap car

Mrs_Atko profile image
Mrs_Atkoβ€’ in reply tohg1234

Understanding family dynamics is always difficult - i'm assuming you can't speak to your son about this? Is he not concerned for your welfare? Perhaps you can speak with a friend or someone who you can confide in. But either way, get yourself checked over!

January-2016-UK profile image
January-2016-UKβ€’ in reply tohg1234

Have you spoken to your medical team yet?

hg1234 profile image
hg1234β€’ in reply toJanuary-2016-UK

I had no transport as of yet but did make a call to the cancer doc

Mrs_Atko profile image
Mrs_Atkoβ€’ in reply tohg1234

Is your Oncologist taking your latest symptoms seriously and wanting to check you out? Perhaps you can ask a friend to take you to the hospital? Or a taxi?

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