Mr Google is not our friend

Beware the lure of Mr Google, especially at 4 in the morning! Lots of facts but I'm learning rapidly from your posts that everyone is different and some of the 'facts' are just plain scary. Will pledge to wait and talk to Mr Real Person and our appointment on Monday.

[Katmal-UK]

Worst thing ever. One of my top tips, if not the top tip is stay away from Google. Statistics are just that, statistics cant tell you what will happen to you or in this case your other half. Your beloved other half isnt a statistic. Statistics said I shouldnt be here but here I am NED and in my tenth year. Statistics said my mum wouldnt make 5 years, in fact she was stage 3 and her ovarian cancer never recurred. Also a lot of the statistics are out of date and there is so many different treatments out there with new ones coming along all the time. I know the waiting is tough but try to do something nice this weekend. Big hugs. Kathy xxx

[Hidden in reply to Katmal-UK]

Quite right. I've blitzed the supermarket and got loads of treats and fruit. Basically anything I thought she might fancy as she's not eating much without feeling full quickly. Yes, chocolate was in the trolley! A trip to the coast and blow the cobwebs away if the weather is ok, or maybe even if it's not! Have a good weekend !

[Katmal-UK in reply to Hidden]

Go even if its not! we went to Llandudno the weekend before my op and it was the best thing even, a weekend to remember xx Take care xx

[Microbabe]

Definitely leave mr google out on the naughty step .... it's even worse when you look in the wee hours when your at your lowest ebb... treats that are tangy lemon flavour as your taste goes bizzare .... not long to wait now for some answers so you will know what your both facing ... best wishes 🤗

[Hidden]

I do not like thee doctor google, you scare me so much, The real doctor is far better than a virtual one. My mind went into overdrive today, I stopped and had a free blood pressure test. The Care Assistant told me my readings were high and to see my gp asap. So driving the car home my mind goes into overdrive ie there must be a reason for this ie OC. So I rang the HQ of the Heart Group doing the test only to be told, well the reading should have been checked twice more and that while it was on the high side of normal it wasnt overly high, My pulse was 56 which is good enough, So will watch the diet and walk more and see if that helps and will check back with my gp in a few weeks. We can work ourselves into a state cant we and at night its ten times worse.

[Lily-Anne]

I love dr Google. There are some fantastic research papers and although you can't label yourself even in stage and grade there is also good information. Knowledge is king. If it wasn't for dr Google I'd never have stumbled on this site.

Nothing cancer related ever makes nice reading. Sadly.

LA xx

[Sunfleury-UK]

Recommend looking only at good quality info initially... Try the main charities: Ovacome, Ovarian Cancer Action, Ask Eve and Target Ovarian Cancer.... There is a great guide 'what next..?' by Target for newly diagnosed. Not just medical but holistic... It's just been redone so bang uptodate. You can download or order a paper copy via their site. Good not just for the woman diagnosed but also those closest to her I think...

Enjoy the seaside.... We went to near Bambrough when newly diagnosed, it felt like the right thing to do!!! Very best wishes Sx

[Hidden in reply to Sunfleury-UK]

The Target site is good. Had a quick look and read fully later. Thanks

[Mommoo65]

I HAD to knock on Mr. Google's door as soon asthe words Ovarian Cancer came out of my surgeons mouth. Because that is all he mumbled to me to explain what he found during my hernia surgery. He told me to make an appt with a gynecological/oncolgist. Who by the way mumbles worse than he does and says virtually nothing unless I ask a question. Those 2 doc's are friends so I imagine them at dinner together mumbling. 😂 gut I needed information on a cancer I had never heard of. PPC.

So I have had to do my own research from the get go. I ignore the survival stats and try to read info from reputable and current sites.

One major thing I have learned from all these wonderful ladies and gents on here is everyone's journey is different even if the stage and type of ovarian cancer is the same.

I wish you the best and try not to worry and treat yourself big time for each and every milestone. Hugs., jill

[Choski]

The trouble with your searching Google is that you don't yet know what you're dealing with and until you do you're getting far too much info and a lot of which isn't and won't be relevant. That will freak you out as you've found!!

I researched once I received my definite diagnosis - but that's me - I did quick research, read everything and took what I needed. That's what works for me but I realise that not everyone can be dispationate- for me it was knowledge and not scary. But you do need to know firstly that a) yes it is ovarian cancer then things such as b) type c) treatment etc. Surgery may need to happen before you get even to a but its too early to say.

It's hard but you need to wait for facts and there are a lot of steps ahead for you both first.

Enjoy the weekend, go for a lovely walk, have a lovely together time

Clare 😀

[Cropcrop]

It's always my advice to avoid Dr Google as he can be very misleading and dangerous, stats can be so very misleading and out of date and, most importantly, unnecessarily damned scary especially when you and your lovely lady are at a low ebb. Wait until you see the doctor on Monday, write down any questions you both may have, in my experience there's an invisible amnesia barrier as you enter the consulting room that makes you forget everything you wanted to ask as you enter.

Good luck on Monday, sending big hugs to you both and lots of love ❤xx Jane

[Sunfleury-UK in reply to Cropcrop]

Absolutely echo the suggestion to write down questions and don't be afraid to tick off the answers! Also, it was suggested to me by a medical professional that it's perfectly acceptable to ask to record the meeting on your phone / iPad etc as it can be really helpful to listen back to what's said... We had a couple of complex meetings and when discussing them afterwards realised that we weren't completely sure of some of the details... Thinking of you both today, best wishes, Sx

[Jane03]

Too true! I worried needlessly for weeks xj