Hello wonderful ladies, I hope your new year was as good as possible and that it's positive for you all this year.
Having had my CT scan last Wednesday for a likely 2nd recurrence and my dreaded results pending on Wednesday 4th Jan I wasn't looking forward to going out and celebrating a 'Happy New Year' on New Year's Eve. I actually surprised myself, we had a table of 12 of us all really good friends of mine, my closest actually, and I had a really great evening, lots of wine and prosecco, great food and dancing, had a bit of a melt down on my husbands shoulder at midnight understandably I think but quickly pulled myself together!
Anyway I'm likely to be in treatment this year having been NED for a year (and previous to that 2 years) but I am trying to get my head round it before I get the news. Just going into the hospital and seeing my onc just fills me with dread as to what he's going to say but I feel generally well so hoping it's not all bad ??!
Attached a pic of hubby and I from nye and love, health and happiness to all of you out there xxx 💜💜💜
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Jo2305
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Thank you for your replies, we weren't sober at the end of the night, didn't leave till 2:30am! That pic was fairly near the beginning! lol
Just need to get the dreaded results done so I know the plan moving forward. Hate the thought that I'm facing my 3rd chemo in 4 years since diagnosis in oct 2012
Hi Joni, We sem to be on the same chemo path, I too was diagnosed on Oct 2012 and I am possibly looking at treatment for 3rd recurrence. I see the oncologist the begining of Feb and wish you well tomorrow. Pam xx
Great photo and you look so happy. All the very best for your results. My first time NED was 4.5 years, second about 18 months and third and current is 3 years 4 months so if the results of your ct arent as good as you are hoping for then you can get another long remission . Glad you are feeling well. Please keep us updated. Sending you a big hug and all the very best for Wednesday. Kathy xx
Ah thank you Kathy what a positive reply and so good to hear that it still is possible to get a long remission. I feel so well generally which i guess is a good thing other than a few tummy twinges but nothing to have to take painkillers for. I have had carboplatin only for my 2 x 6 rounds of chemo so far so haven't lost my hair and had very little side effects so dreading what they are going to put me on this time and also the thought of losing my hair terrifies me! Guess I'll have to wait another 48 hours.
Glad you are still so well, fills me with some hope
If you do need to restart treatment hopefully they'll go with just the carbo again or maybe add in gemcitabine which isnt too bad and you dont lose your hair. Stay strong, youve done this before and you can get through it again, I didnt think I could to be honest but I did and still working full time. Might be worth asking if there are any trials you could go on, Im on my third trial Xxx
Ah thank you so much, I work full time as well in Bristol and had quite a bit of sick just over a year ago with same thing so a bit worried about that too being only a year later. They did mention trials first recurrence but the carbo thankfully did the trick but only for the year this time not 2 .
I will keep you posted, thanks so much for your lovely messages they give me more positivity xxx
Don't worry about your job, if you have any issues with your employers speak with Macmillan, they have advisers who can speak with them and advise them of your rights, as you have a cancer diagnosis you are protected by law so thats one less thing to worry about x
Lovely photo,does you good to let your hair down! Wishing you all the best,but it sounds like you are a strong lady and can cope with another battle,(big girls pants on), think positive, it may not come to that,
Lots of love,
Carole xxx
A really nice photo, try not to stress for the result of the scan, hopefully you will get another stay out of jail card. I wish you well for your appointment
Hi.I'm in the same boat as you.Diagnosed in 2014.I had my scan results just before Christmas.They think I have a couple new particles in the abdomen.May be a reocurence or scar tissue.Getting a second opinion. Now my oncologist is on holidays.I am waiting for a call whether there going to leave me alone for three months until my next 3 month scan or do a pet scan.The waiting for results are getting to me.I did manage to go out for New years also.I had a good time.I'm staying as positive as I can until the results come in.If I have reoccurred, I will deal with it,hopefully this time I will be stable longer.It's only been 9 months.My first reoccurance in 2015 only lasted 10 months. I'm hopeing I will be able to go on my vacation I planned for the middle of Feb. before I go into treatment..Like you said,hopefully its not all bad.Best wishes.Lynn💙💙
what a beautiful picture! Good luck on the 4th, keep hanging in there, new treatments/discoveriesvare always in development and on the horizon, we just need to keep sticking around to benefit!
Hi there, I found you as do you live in Devon? I think I might be a similar age to you too.
How are you? It sounds like you have absolutely gone through the mill with being ill and so much Unknown. Have you had results these last 2 days? I really am hoping you are OK?
It is a wonderful photo of you both and you look amazing (cliched though it sounds). I really am hoping you are both doing ok and that you had a good result.
I am sending so much love and warmth on these cold days xxx
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. Glad you are feeling well. Please keep us updated. Sending you a big hug and all the very best for Wednesday. Kathy xx
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