19 Years & we are here.: Just found this page and... - My Ovacome

My Ovacome

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19 Years & we are here.

Empty_Nester profile image
25 Replies

Just found this page and 1st off kudo's to you all. My wife was on the Carbo/Taxol regiment 19 years ago for Stage 4 Ovarian Cancer. This was when the use of the two drugs were still in the experimental stage. The doses weren't known yet, so she was given very high amounts. When we asked how much she would be given the doc said if 5 pounds will kill you I'm going to give you 4 3/4.

Your-all's symptoms are identical to what my wife and our family, had and are still going thru, sorry for that newbies. Unfortunetly our family is going thru this again. My younger sister is just starting the Carbo/Taxol regiment for Uteran Cancer. She is suffering now as some of you are and as my wife. Have faith and hold on tight. We are 19 years out and still going. Don't give up. The drugs are the best we have, for now. They are for the body but faith and love is for the soul.

From an earlier post recommendation We are going to look into the acupuncture for the foot and leg pain. Thank you for that info. Yep after 19 years my wife still has that. But we still have her and that's what it's all about.

P.S. Try home made custard during the treatments. My wife said that really helped. Comfort food and its loaded with protein for good blood health.

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Empty_Nester
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25 Replies
Venessabr profile image
Venessabr

Wow! Thanks for this. Quite an encouraging story. Will certainly forward this to my mother and she feels like hope is lost.

Sherrym profile image
Sherrym

Merry Xmas & thank u for sharing

Choski profile image
Choski

Thank you for taking the time to post, what a comforting post it is too. I'm sorry to read about your sister - there is a specific womb cancer site I believe plus it says there is an active Facebook group if she would like to chat with other ladies going through the same treatment etc. healthunlocked.com/wombcanc...

Home made custard is so tasty, I haven't had any for ages so may well make some!

Have a good Christmas and all the best for your wife and sister

Clare

85live4ev profile image
85live4ev in reply toChoski

Hi Clare, you are always full of good advice. When I see you have given a reply I read yours blog first. Cindyxx

thank you very much for posting. has your wife been on chemo for much of this time?? you give me hope

signed

stage iv, dx'd 5/15

GBIRVMIC profile image
GBIRVMIC

Thank you for sharing, it's wonderful to hear your wife's news. I'm so sorry to hear your sister is fighting cancer. I must try some homemade custard too. Wishing you and your family a Merry Christmas Love Michelle xx💐

thesilent1 profile image
thesilent1

Thank you for sharing this, it is so encouraging to us ladies. As Kagan has asked, I too would bve interested in how many times she has had chemotherapy over the 19 years. I am 3 1/2 years in anbanbd have now had it twice, hoping that I might get thgthgat long. Sorry about your sister. Best wishes to you all. Ann

Yoshbosh profile image
Yoshbosh

What an amazing story. It brought a lump to my throat. I'm sorry your sister is going through it now, but I hope she takes a lot of strength from your wife's story.

Here's to us all being here 19 years later!

x

caf132 profile image
caf132

THank you for finding us and sharing your story. You have been to hell and back and are stronger for it. Your story gives us all hope for a future. Please keep us posted about your sister. she is lucky to have you. Please have her post here and we will help her to cope.

XX

Grace123 profile image
Grace123

Wow - so good to hear your wife's story. I too am interested in whether she's had any recurrence and further chemo during the past 19 years, & anything else she's done, or continues to do which she thinks has helped her live so long despite the prognosis. I'm sorry to hear about your sister - your wife will be great inspiration to her, as she is to us. Thank you so much for posting. xxx

ellseybellsey profile image
ellseybellsey

Your post is so encouraging for all the wonderful warriors going through this beast. Thank you for sharing this with us all.

Ellsey xx

Nancybib profile image
Nancybib

Wow!!! God Bless you All. Thank you for sharing such an inspirational story. I will Pray for your family. Thank you so much for sharing. Nancy. Merry Christmas

GoldenGourd profile image
GoldenGourd

I second all the other replies and wish you and your family a comfort food enriched winter-time. Makes me want to eat custard now.

All the best to your sister as she goes through her fight.

Netti

IrishMollyO profile image
IrishMollyO

Hi there

Thank you for sharing your wife's story. It really gives so much comfort and will give hope to so many women. We don't hear from many long term survivors but I guess after a long time disease free they don't want to be reminded of the bad times.

I'm sorry to hear of your sister but as you say the treatment for Cancer has gone a long way since your wife was diagnosed. I wish her every success . Take care.

Thank you for sharing your story, it has been a hard slog for you, Now you face your sisters illness, What strikes me though and I am not being negative merely making an observation that there is no great change to chemo from the time of your wifes diagnosis, Isnt this really sad all first time patients tend to be offered this regime now, I got it first time around ten years ago,

With all the labs around the world, there has to be an alternative but our health services will not change their policy to treatment. Is it that carbo taxol is more cost effective?

judyved-US profile image
judyved-US

Hi Empty-Nester......Thank you so much for your post. We can all use such encouraging stories. I'm so sorry about your sister, and I hope she has a similar wonderful story as your wife.

Merry Christmas and happy, healthy New Year! Best to you......JudyV

thank you so much for your post. am stage 4, but only diagnosed in 2015. 19 years sounds amazingly wonderful!!

Empty_Nester profile image
Empty_Nester in reply to

Are you still undergoing chemo? After my wife's Carbo/Taxol regime she under went 2 years of Tomoxiphin. The.routine x-rays and CA125 test were our gauges. Also my wife's knowing of her own body. We have to say, we did have absolute faith in our doctor.

May your future be free of incident and your path be light by blue sky's and sunshine.

Kagan

in reply toEmpty_Nester

yes, its doxil now. recently sustained 2 vertebral fractures without trauma so now awaiting bone biopsy. we cultivate hope and go forward as best we can.

may your holidays be very happy.

Shqiperia profile image
Shqiperia

Thank you for sharing. You give us so much hope . Happy Holidays to you!

Kim1958 profile image
Kim1958

Your wife's story is very inspiring and encouraging! It makes me feel very hopeful. Has she had any recurrences in the 19 years? I am sorry to hear about your sister. She is fortunate to have you and your wife supporting her. Kim

LesleyGreengran profile image
LesleyGreengran

Great to hear such good news though sorry about your sister. I love good custard and I presume you mean real custard made with eggs and milk, not powder.

Empty_Nester profile image
Empty_Nester in reply toLesleyGreengran

Oh heck no. Powder, never. Real eggs and real milk. Feel good food thru & thru. Eat it slow, close your eyes and let it carry you away. A mini vacation in a bowl.

Mrs_Atko profile image
Mrs_Atko

Thank you for sharing your wife's wonderfully inspiring story Kagan although I echo previous sentiments regarding your sister's current situation. But as others have said, I hope she draws on the strength demonstrated by your lovely wife.

Homemade custard...scrummy! Makes for very good homemade vanilla ice cream too 😋

I wish you all much peace and love over this festive period & into 2017 & beyond.

Jemima x

Nicky100 profile image
Nicky100

Wow this is an amazing story thank you for sharing this, success stories are what we need and this has lifted me up today thank you for sharing this. I do hope you all continue OK and that other family members get better soon xx

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