Tamoxifen

Hi ladies after a few tough weeks where I had to stay in hospital for a few nights twice oncologist has decided to take me of Etoposide as I'm not tolerating it at all, he has now put me on Tamoxifen, has anyone got any experience of this drug, would like to know your experience.

Take care wishing you all well

Karen

Xx

[Katmal-UK]

Hi Karen. I dont have any experience of Tamoxifen I just wanted to wish you well and send you a big hug xx Kathy xx

[Hidden in reply to Katmal-UK]

Thanks Kathy needed a hug xxx

[Hidden]

Hi Karen I am sorry things didnt work out as hoped for with Etopside. I feel that some of the ladies on here have been on Tamoxen and hopefully you will get some feed back. It isnt nice to have a reaction to chemo. Sending you a big hug best wishes

[Hidden in reply to Hidden]

Thank you xx

[Judymagpies]

Hi Karen, I was on Tamoxifen for 7 years following my initial breast cancer diagnosis. I experienced no side effects and had a normal quality of life. I hope you enjoy the same success with Tamoxifen , cheers Judy

[Hidden in reply to Judymagpies]

Thanks Judy that's good to know xx

[AlisonBoyd]

Hi Karen

I've been taking Tamoxifen since January 2016. I have primary peritoneal cancer and when I finished chemo last December there were still small cancers remaining. It's working well so far for me - I feel fine, only side effects have been some initial joint pain which didn't last and lots of hot flushes which are annoying but (for me) bearable. I do get tired easily, but that could be a result of the chemotherapy I think. At my last scan the oncologist said the cancers had got smaller, which was even better than we were hoping for, as the expectation was that Tamoxifen might maintain the status quo. Hope it works well for you too.

Alison

[Hidden in reply to AlisonBoyd]

Hi Alison that's brilliant to know,and so pleased it's,working for you, thank you and take care xxx

[foss54]

Hi Karen, I have PPC, being treated the same way as Ovarian cancer. Last year, I was on Tamoxifen and it kept the cancer at bay for about six months, when I went back to chemo. I had no side effects, except hot flushes, sometimes, which was great. Hope it works for you - all the best, Eileen x

[Hidden in reply to foss54]

Hi Eileen thanks for replying, that sounds good, i have been warned about the hot flushes but I get them anyway, I'd be pleased if it worked for me for 6 months thanks again.

Best wishes xx

[Julie40]

Sorry to hear this Karen. Hope you get started on something else soon xo

[Hidden in reply to Julie40]

Thanks Julie if tamoxifen doesn't do anything my oncologist says chemo again, hope you are doing well Julie xx

[Julie40 in reply to Hidden]

Hopefully you get settled on the Tamoxifen get a break. I'm doing well thanks. Still on the parp inhibitor, it's been 6 months so praying in continues xo

[Hidden in reply to Julie40]

Thanks Julie here's hoping 😃

Ah I'm really pleased for you, sending lots of prayers and positive thoughts your way

Xx

[Julie40 in reply to Hidden]

Thank you and right back at you ❤️ 🙏🏻 Xo

[antheamary]

Hi i have been taking tamoxifen for nearly a year. I do get hot flushes. My ca125 has started to go up now so waiting for result of ct scan. I took 1 tablet but i believe some doctors px 2.

[Hidden in reply to antheamary]

Yes my oncologist has px 2 for me, so I'm hoping the side effects will be minimum, i must admit I'm hoping at least a few months, wishing you best wishes for your results xx