My mum has just been taken of weekly taxol because after having 7 lots the doctors have decided it's not working for her, as they have seen some deterioration in her disease from her latest scan (despite ca125 dropping significantly and consistently).
They want to start her on the Rotterdam regime within a week or two and we've struggled to find much new information about it online. Does anybody have any positive stories to tell about their time on Rotterdam i.e. are the side effects as debilitating as they say, did the treatment have a positive outcome?
I'd also be interested to know if anybody has been successfully placed on a clinical trial despite having a bowel obstruction or restriction? We are extremely disappointed that mum has previously been told she's eligible for a trial drug which effectively stops the progression of the disease for up to a year, but they are now saying because she has some restriction to her intestine, as the disease has started to grow around it, she will no longer be allowed to access this drug. This seems highly unfair to be told yes there is a drug that we know scientifically will help you, but the rules mean we're not allowed to give it you.
Any info you can give on the above topics would be highly appreciated.