My journey : Was diagnosed with Ovarian Cancer in... - My Ovacome

My Ovacome

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My journey

Annr5h profile image
22 Replies

Was diagnosed with Ovarian Cancer in March 2016 stage 4. 2 months into treatment and doing good. I'm on ICON 8 trial having chemo weekly.

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Annr5h profile image
Annr5h
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22 Replies
SandyL profile image
SandyL

I hope your chemo is going well, with not too many side effects. I was also diagnosed with Stage 4 Ovarian Cancer over 17 years ago and obviously "still here". I went into remission after finishing treatment and have thankfully remained so ever since. I just wanted to give you some hope to take along with you every time you go for your chemo. Wishing you very good luck in your journey. Sandy.

Choski profile image
Choski in reply toSandyL

Sandy, what an inspirational post. Xx

Clare

Steghart profile image
Steghart in reply toSandyL

Wow, you give us all hope! I was diagnosed with stage 2 in 2012 but have had reccurance, my Auntie had 10 years before first reccurance then it never came back x

leonorame profile image
leonorame in reply toSandyL

Hi Sandy, how did you manage to be without reaccurans?I was diagnosed with stage 3 in 2014 and now my liver enzymes are very high and i'm afraid the cancer is coming back.I am going to see the oncologist in two weeks time.Thank you for any advice

Naimish profile image
Naimish in reply toSandyL

Hi Sandy, first of all very very happy for you. Btw, why do you say in remission after incidence free 17 years? Cant you say that you are cured?

Naimish

SandyL profile image
SandyL in reply toNaimish

Thanks Naimish. That is a very good question. My Dr has never said that I am cured, just that I am in remission. And that's fine with me because it stops me from letting my guard down and helps me be proactive utilizing preventative measures to hopefully stop it returning.

Naimish profile image
Naimish in reply toSandyL

Thanks Sandy for the frank response . I would however rather tell my wife that she is cured i/o remission. Interestingly, you mention "proactive preventive measures to stop it returning". I will be gratified if you can share these measures. I must add here that you are indeed a role model for this bunch of warriors.

Naimish

Dollysmum profile image
Dollysmum in reply toSandyL

Thats given me hope too. Thank you xx

Choski profile image
Choski

Hi and welcome, great photo by the way. I too was diagnosed in March following TAHBSO etc and have just completed chemo 3 - mine is every three weeks. You'll find that this wonderful group is made up of ladies of all stages of diagniosis etc and all types of treatments. It's a great and safe place to post, ask questions, share experiences, post photos etc etc. There are also partners who post too.

Take care

Clare

Boot1947 profile image
Boot1947

Hi there. Was 'only' Stage 3 in March 2014, but was also on ICON8 weekly after a total hysterectomy. No side effects, apart from some neuropathy in my feet (and lost hair, of course!) and have been NED (no evidence of disease) since chemo finished in August 2014. I think weekly chemo is easier on the system. Wishing you all the best. Deb

baxbird profile image
baxbird

Hi, firstly, sorry that you have had to find out group, but welcome and take comfort from it. We are very good at supporting and giving out advice from our own experiences.

I was diagnosed Jan 2013 and had the ICON 8 weekly mixtures, I too found this easier to cope with that my current 3 weekly regime. Still got the hair loss but have to say that it's not to such an extent as I now have it!

Good luck with your treatment

Dawn

Damelza profile image
Damelza

I think you are all pretty bloody amazing!!! Well done all of you .

Gleedy profile image
Gleedy

I was diagnosed jan and also on icon 8. Ive had 4 cycles but just stopped so i can have my op in june. This is a great place for advice and support. The brave ladies here have helped me but i don't feel very brave approaching my op!!! Good luck and keep strong x. Tracey

thesilent1 profile image
thesilent1 in reply toGleedy

Hi Gleedy, you'll be fine. We all get nervous going for surgery but just remember the surgical team are very experienced, they do this day and daily and they have your best interests and safety at the forefront. Take a nightie or two with you for the couple of days post op as you will likely have a cathetar in and then you can have PJs after that. I had an epidural for post op pain relief and it was excellent. Good luck. Ann xo

Gleedy profile image
Gleedy in reply tothesilent1

Thank you. In many ways i cant wait to have it done. Xx

thesilent1 profile image
thesilent1 in reply toGleedy

Yes, I know what you mean. Plan some nice things for your recuperation, Somme good boxed sets to watch. A wee walk every day, building up distance slowly. A nice little trip out for coffee with a friend. Accept any offers of help, don't be too proud. Let us know how you get on. Xo

Gleedy profile image
Gleedy in reply tothesilent1

I will do. Thank you lovely lady xx

Annr5h profile image
Annr5h

Thankyou ladies for all you amazing replies very encouraging stories.

27-359 profile image
27-359

Welcome to the site. You will find loads of support and helpful advice here.

Also inspiring and good news stories that will help you along the way.

thesilent1 profile image
thesilent1

Welcome to our 'club', the one that none of us really wanted to become a member of. Glad you found us, you will get lots of support and tips on here and there are other ladies who have been on/are on the ICON 8 trial. Your photo is lovely, you look like someone I know here in Belfast. Good luck. Ann xo

Dollysmum profile image
Dollysmum

Hello and welcome. You'll find lots of support and helpful advice here. I'm Stage 4 too, diagnosed last November - also doing good.

Lovely photo by the way.

Debs xx

Julie40 profile image
Julie40

Welcome to the site. I was diagnosed stage 4 back in Apr 2014. I also was on the icon8 trial for weekly carbo/taxol.

Good luck for the rest of your treatment. There are lots of inspiring stories on here. Stay positive and enjoy every day xo

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