Peritoneal recurrence: Hi there, wonder-ladies! I... - My Ovacome

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Peritoneal recurrence

dea64 profile image
9 Replies

Hi there, wonder-ladies! I am back with a question - have any of you had the first recurrence (OC) a peritoneal one? My TAC resulted clean, not the last PET instead, Ca125 raised up to 600, I am going to do investigative laparoscopy with washing to make them possible take decision. One of the probabilities is to have surgery with HIPEC as part of a trial if lucky with randomization. 

Wish you the best and to stay strong, together! Diana

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dea64
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TrishLey profile image
TrishLey

I haven't had this but the proactivity of your team is really good. Wishing you the best xxx Trish 

dea64 profile image
dea64 in reply toTrishLey

Yes, indeed, they are great, especially with surgery and I think oncologists too. For now they applied the traditional procedure, now on - will see! I hope. Anyway I feel that although all this big disgrace, I am lucky to have them and trust them a lot! Things can be always improved, it only takes time... They do the best they can, I'm sure!  

Thanks and...a big hug, Trish! 

Naimish profile image
Naimish

Hi Diana, has Peritoneal Carcinoma been defined or it it under investigation? 

The Peritoneum area being as vast as it is, cyto reduction (debulking) with HIPEC, aka Sugarbaker technique  is a good option. This will probably be followed by Chemo. Wish you all the best and am sure that you will not have much cause for worry. 

Naimish

thomas62 profile image
thomas62

Hi dea64

Which trial may you be looking at for cyto and HIPEC and which hospital would do it? Wishing you all the very best.

Naimish

What exactly is the Sugarbaker treatment?

Gwen

dea64 profile image
dea64 in reply tothomas62

I don't know what is the Sugarbaker treatment, never heard of it -where did you learn about? The trial is a multi-centre one here in Italy and it's called HORSE. 

dea64 profile image
dea64

It is very supporting what you wrote, Naimish, lot of thanks! Wish your wife and you all the best too! 

I was diagnosed with OC IiiC witch is usually associated with a large quantity of liquid in the abdominal cavity containing cancerous cells witch contaminates peritoneal membrane too. It's not a primary but a secondary kind of tumor - peritoneal carcinoma, kind of metastasis due to OC.  Started with 6 neoadjuvant Chemo (not really sure it is the appropriate term in English) - one every 3 weeks, than surgery and after another 3 Chemo, all of them made of carboplatinum and taxol. Follows maintainig therapy with anti-angiogenic called Bevacizumab, 21 cycles one three weeks away. 6 months later after I finished chemo Ca125 started rising. TAC negative, than PET negative, and later another PET shows something in the V-th segment of my liver, subglissonian region (on surface) but no trace revealed throughout echographie. As long markes continuated increase, my gynecologist surgeon decided for another laparoscopy to estimate the situation and decide what to do further. If I'll accomplish certain criteria there is the possibility to take part of a Trial consisting in surgery associated with HIPEC. This is the story. I'll have laparoscopy next Friday, THAN WILL SEE! 

Send you my best regards and ...thanks again! Diana

thomas62 profile image
thomas62

Hi dea64

Thanks for your reply.  I wish you good luck.  Keep us uptodate with events.

Perhaps Naimish will know what the Sugarbaker treatment is!

Gwen

dea64 profile image
dea64 in reply tothomas62

nice.org.uk/guidance/ipg56

"The Sugarbaker technique was developed by Paul Sugarbaker at the Washington Cancer Institute. It involves complete surgical tumour removal (also known as complete cytoreduction) combined with intraoperative heated chemotherapy, followed by postoperative intraperitoneal chemotherapy."

thomas62 profile image
thomas62

Hi dea64

Wow, that is some procedure!!!  Thanks for the info.

Gwen

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