New round: Started my latest lot of chemo last... - My Ovacome

My Ovacome

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New round

Strawberryfield profile image
9 Replies

Started my latest lot of chemo last Thursday Caylex and avast in.going to see what happens after 3 rounds and if there is no improvement I think I'm going to give up on the chemo.i haven't really had a break from it for just over a year and it's just one disappointment after another.anyway I was just wondering about how this combination has worked for those of you who have been on it.regards Carolyn x

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Strawberryfield profile image
Strawberryfield
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9 Replies
EilyEire profile image
EilyEire

Hi Strawberry ,Im in much the same situation myself,know all about disappointment .I had 4 goes of caelyx didn't work for me on topotcan now at least blood markers droppin awaiting scan in new year, a friend of mine was on caelyx and avastin great result nearly 2 yrs clear,so pg It be the same for you,I know it hard but don't give in,dont let it beat you ,theres a treatment there for you, that's what we have to believe cheer up and take care xxxx

Strawberryfield profile image
Strawberryfield in reply to EilyEire

Thank you so much for your reply.it gave me great encouragement I shouldn't just give up iv come this far and I can keep going.sometimes you just need someone to tell you that so thank you regards Carolyn x

in reply to Strawberryfield

Hi Carolyn, never ever give up. Thats the way to do it we keep going and fighting back this beast I finished Avastin about seven weeks ago or more. I am now trying to enjoy life and live it to the fullest while on treatment, its the only way to go

Taichipat profile image
Taichipat

I know exactly how you feel and empathise with you. 18mths down the line with no disernable break since diagnosis I feel weary that my life consists of mainly hospital appointments. and A & E admissions.

Nothing seems to be holding the disease back but at the end of the day you have to try for your family. I guess there will come a time when they say that's "all folks" but until then I shall go on. Don't get me wrong I am cheerful most of the time but anyone would feel the same. I even have chemo both Christmas and New Years Eve. Both will be long days as I live 60 miles from treatment hospital. What choice do we have? I am grateful for my wonderful family and friends and feel I owe it to them to carry on as long as I possibly can. I realise too that there will come a time when I just want to throw the towel in but obviously not there yet. Funny how you can accept less and less of the life you had and keep going.

vipervictoria profile image
vipervictoria in reply to Taichipat

Wishing you all the best, Pat. I read recently about a lady who was on chemo for four years before she got into remission. All is possible. Vx

Taichipat profile image
Taichipat in reply to vipervictoria

Thanks V. Only hope the 12mth (well 5mths now) prognosis is wrong. I am not downhearted some don't get that. Terrible things in the world all the time so I feel lucky in a lot of ways.

This may sound very silly to some of you but I was eating a packet of Lovehearts the other day (left over from Halloween) and every one seemed to be a secret message to me. Like HOPE and then last of all MIRACLES DO HAPPEN. Yes it could be true...

Have a lovely Christmas and New Year.

Love Patx

vipervictoria profile image
vipervictoria in reply to Taichipat

'Course it's wrong. You're still standing, as Elton John said. A prognosis is at best only an educated guess, based on averages. And no-one is average. Like the lady I mentioned, there's always the chance that this chemo or the next will work really well. 'Tis the season of miracles after all. I hope you enjoy every moment. Vxxx

vipervictoria profile image
vipervictoria

Carolyn, I really hope this works for you. Fingers crossed. Vx

Btte profile image
Btte

Hi Carolyn I had caelyx 3rd round in 3 years and it's put me in remission, so at the moment I am feeling the best I have felt in 3 years, so please hang in there. Lots of love Bridie xx

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