Topotecan: Hi All. Feeling very down starting 3rd... - My Ovacome

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Topotecan

TrishLey profile image
13 Replies

Hi All. Feeling very down starting 3rd line in two weeks Topotecan and Carbo any one any experience of Topotecan? Any stories most welcome. Seems like it's spread to my chest area - anyone with this kind of spread? Needing some support from my sisters here.

Much love

Trish

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TrishLey profile image
TrishLey
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13 Replies
Missfitz profile image
Missfitz

Hi TrishLey. No advice on that chemo cocktail but wanted to say that I'm sorry you've had a recurrence and I hope it is effective for you. You are always great to respond to others on this forum and I hope you get the support you need at this time. X

carol-b profile image
carol-b

Trish,

I don't have any experience with Topotecan yet but am suppose to start this (my 6th line of chemo) at month's end. I do not have any spread into the chest area.

Wishing you much luck,

Carol-b

Whippit profile image
Whippit

Dear Trish

I'm so sorry to hear you're feeling a bit crap. You've always been such a great supporter of everyone on this forum. I hope we can help you get through the bad times. I don't have tumours on my lungs but I think it's a case of when rather than if.

Sending loads and loads of love n hugs. xx Annie

daisies profile image
daisies

Trish, so sorry to read your news. Can offer no advice on Topotecan or any side effects though, but I am sure you will cope with any thing that occurs...as you always do. It was mentioned when OC recurred that some sign of tumour/fluid on lungs, but no mention since and I don't ask, so I reckon no real problem there.

Will be thinking of you over the coming weeks.

Much Love, Daisies.

jennybutler profile image
jennybutler

Hi Trish just sending good wishes to you hope all goes well for you sorry no info on your new regime but we all react differently even on the same chemo. Take care of your self.

Love jenny xx

jennybutler profile image
jennybutler

Hi Trish just sending good wishes to you hope all goes well for you sorry no info on your new regime but we all react differently even on the same chemo. Take care of your self.

Love jenny xx

jennybutler profile image
jennybutler

Hi Trish just sending good wishes to you hope all goes well for you sorry no info on your new regime but we all react differently even on the same chemo. Take care of your self.

Love jenny xx

jennybutler profile image
jennybutler

Hi Trish just sending good wishes to you hope all goes well for you sorry no info on your new regime but we all react differently even on the same chemo. Take care of your self.

Love jenny xx

jennybutler profile image
jennybutler

Hi Trish just sending good wishes to you hope all goes well for you sorry no info on your new regime but we all react differently even on the same chemo. Take care of your self.

Love jenny xx

jennybutler profile image
jennybutler

Oh gosh how did I manage that talk about getting my message across, sorry Trish do hope all goes well and not too many side effects let us know how it all goes. Thinking of you jenny, xxx

TrishLey profile image
TrishLey in reply tojennybutler

Thanks Jenny x You certainly made your point :) It raised a smile on a rather glum face so it was worth it xxx

TrishLey profile image
TrishLey

Thanks everyone. I had a few days away and my spirits are lifting. I am having some severe difficulties with the site since the change and don't find it very user friendly (I can never find the sign in button). Thank you all for taking the time to write I know we all have our own worries and problems with this journey we are on. This is such a wonderful site filled with love, support and courage. x Trish

jennybutler profile image
jennybutler

Went to my onc. Today told her get very depressed she said it was the steroids that bring you down no such thing as a free lunch. Lol love jenny xx

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