Well its been a long time since I posted and a lot has been going on
Due to the difficulties I had with my treatment last time at the end I decided to ask my consultant about getting a second opinion so that I could find out if there were any trials or other treatments available as at the time the thought of starting third line chemo in six months was shall we say less than appealing.
As I lived in wales I was concerned as to whether I could get a second opinion in England. I asked my consultant about it and he was all for it and thought it was a very good idea. I was releived that he was not offended in fact he seemed delighted I had asked. After quite a bit of research and sole searching and a lot of help from ladies on this site and staff at ovacome I decised that I wanted to get a second opinion at The christie in Manchester. I did consider the RM but decided the journey if I was treated there would be too much for me and my family in particular my dad who comes to all appointments with me.
I went to my doctor and to my astonishment was told yes I could go for a second opinion and no I would not have to wait for funding requests to be approved. My doctor was very supportive and sorted it with my consultant who apparently he knows quite well as he used to be a gynocologist himself.
A couple of weeks latter II went back to see Proffessor at Christies in early November armed with a very long list of questions as I thought it may be the only chance I would get to find out more information. to cut a long story short he decided he needed more information in particular my pathology and grading of my cancer.
by which time he had had my pathology redone. He also decided to put me forward for BRAC test and to check for hormone sensitivity and redo my CT scan I was not expecting any of this. He also wanted to see me again when he had additional information.
I had my CT scan which did not show any deterioration since beginning of October. The outcome was that my cancer is low grade and hormone receptive! I thinks that right, but basically said it does respond to hormones. This he said explained why I have not responded too well to chemo, as low grade tends not too, In some ways being low grade was good, but does mean chemo will only have limited effects. This was all new information to me although I have had cancer for 18 months at that point
Unfortunately I did not meet the NHS criteria to have braca test done.
I have been told that there is a possibility of a trial for my type of cancer which involves hormone treatment so am hoping this is a different way forward for me in future I am hoping to be treated at Christie.
I will be going for next appointment in March so am hoping trial is through by then and I meet criteria or better sstill dont need treatment yet
I have had my letter to go for my scan a week before I see him, but at the moment don't seem to be having any symptoms.
So ladies dont be afraid of asking for second opinion I wish I had done it along time ago
I attended the target ovarian day in Liverpool last month I really enjoyed it. I have also met five ladies all live within about five miles of each other and all have different experiences with ovarian cancer. We have all met up and intend to meet every month. Its made a huge different having others to met and talk to.
I managed to get away on holiday in December which was nice, we went to Tenerife and had a nice time, unfortunately they had the worst storm for 10 years which lasted two days but we still enjoyed it.