Ovarian carcinosarcoma: Hello there , I am 5... - My Ovacome

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Ovarian carcinosarcoma

Jan76 profile image
5 Replies

Hello there ,

I am 55 years old , had a total hysterectomy on Dec23rd 2011 as had a large complex Ovarian mass .results on Jan 9th have shown that I have stage 1c ovarian cancer .Surgeon says its a carcinosarcoma very rare form of cancer and rather aggressive ..

The Ovarian mass leaked during the op and while they did a wash of the area they cannot be sure that some of the cells did not escape ..

Will start carbo /taxol chemo on the 3rd of Feb .

Just a long shot but just maybe someone out there has the same ..worth a try ..

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Jan76
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Willies profile image
Willies

I have carcinosarcoma ovarian and have had 15 chemo sessions in a year and a half over 3 years ago. I have been in remission since then. I feel great.

in reply to Willies

This post was raised 2 yrs ago, its a bit out of date xx

Jan76 profile image
Jan76 in reply to Willies

Hi there .... delighted to see you are doing great that is such good news ...what stage were you diagnosed at ??? .

Iam doing ok ..so far so good .

Love Jan xx

Willies profile image
Willies in reply to Jan76

This info. about this cancer is terrifying. I know it is rare, but there are 2 of us in WNY that ARE SURVIVORS OF THIS CANCER FOR 5 YRS +. WE NEED WOMEN TO KNOW ABOUT THE POSSIBILITIES FOR SURVIVAL. GOOD LUCK JAN76

Willies profile image
Willies

I was diagnosed with ovarian carcinosarcoma over 5yrs ago. Had surgery and 15 chemo sessions in over 1 1/2 yrs. following the surgery. I am 75 yrs old now and very optimistic about the future. I had the carbo/taxol with a kicker of some Gemzar for my treatment.

I have been in remission for over 3 1/2 yrs, and I feel great. Wishing you the same results.

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