Mucinous Cystadenoma- Fast growing but how fast? Interested in hearing from others.

[cherylannie]

19cm mass on right ovary, TAH on Dec, 2013. I am hoping to hear from others on how fast they suspect or know this grows. Does it make sense to have a normal gyno appt 9 months before my ER visit when this was diagnosed? I see a lot of posts from women who have experienced the same thing, shock over size and without symptoms. Although once the mass gets so large, it effects the digestive and urinary systems. Which is what sent me to the ER thinking I was having a appendicitis attack. Referred to Oncologist and took a month to get to surgery. Stomach at that point was huge and painful, couldn't eat, pee, etc. That was a hellish month! 3 months now since surgery, and doing much better. Luckily digestion and urinary tract are working normally since healing from surgery and all labs show benign mucinous cytadenoma. My female issues starting in my middle 30's, with fibroids, heavy bleeding, ovary pain. I had multiple tests, Ablation, Investigative laproscopy, ultrasounds and CT scans along the way. It shocks me that this wasn't diagnosed at annual appt, and I suspect that my early urinary problems and pressure in pelvic area was the tumor. No HRT at this point, but managing hot flashes and long term health from here is next phase to conquer.

[daisies]

Hello & welcome to this wonderful site. So sorry to hear about your journey with tumours. Those .... tumours seem to grow in so many different ways. My 2nd time round with tumours - clear scan & bloods in Sept 2012 at review time and by Nov of that year they had spread around abdomen, liver & spleen. Thankfully, my GP spotted something and did some blood tests...and the rest is history. I can understand how uncomfortable and painful it was for you, but if we had hind sight and knew when to go to GP's and ask for tests - we would be so healthy. Hope all goes well for you. Take care, Daisies

[cherylannie]

Sorry to hear of your path with these tumors. Was your tumor mucinous cytadenoma? What was your course of treatment, first and second time? I'm starting to question what follow-ups I be getting. My oncologist said no further treatments needed, to go back to 1 year exams. I was told my tumor was 5% borderline, with Atypical cells (not of cancerous origin). Is that common to show up in other areas? I am 3 months into recovery and will push for additional screening if necessary.

[daisies in reply to cherylannie]

Hi. Quick tale - I had clear cell OC, stage 1 - diagnosed following total hysterectomy for a pelvic mass.Found when the histology was done on the removed bits & pieces. Anyway had usual 6 sessions of taxol & carboplatin and all seemed fine. 16 months after completion of treatment - review; scans, ca125 readings perfect & put on 6 monthly reviews. But 2 months later - was ill and my GP suspected the symptoms I explained to him - so blood tests confirmed and onto the merry-go-round again but with Avastin added. So here I am , 17months later and still alive. I do realise that not all women can take this drug and OC does not return in all women - so, PLEASE don't worry. Do keep us all posted on your reviews. Daisies xxx

[cherylannie]

Thank you for sharing your story and for the well wishes. I hope all goes well for you with your journey.